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Young People’s Webinar | Connecting MS, NMOSD & MOGAD: Sharing Knowledge and Experiences to Strengthen Our Communities

Virtual: Danmark , Denmark

There are a number of different autoimmune disorders with similar features to Multiple Sclerosis (MS), such as neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD). These diseases share striking similarities that ultimately affect the way in which our communities understand and manage the diagnosis. Hence, it is of utmost importance for […]

SRNA Rare Disease Day

Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.

2023 Ohio Rare Disease Day Event – Cleveland

Case Western Reserve University, Tinkham Veale Ballroom 11038 Bellflower Road, Cleaveland, OH, United States

The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, […]

MEET YOUR EXPERTS – Triff deine Experten!

Virtual: Germany , Germany

MEET YOUR EXPERTS – Triff deine Experten! Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch Wann: 28. Februar 2023 Durchgängig zwischen 10 und 18 Uhr Wie: Einfach vorbeischauen! Online (via Zoom) ohne Anmeldung über folgenden Link: https://bit.ly/meet-NEMOS-experts @Was? Mit Expertinnen und Experten ins Gespräch kommen, Fragen stellen, Gelegenheit zum offenen Austausch, Info-Schnipsel […]

2023 Virtual Legislative Lobby Day

Virtual: United States , United States

Join autoimmune patient advocates nationwide on March 29, 2023, for the National Coalition of Autoimmune Patient Groups’ first virtual Congressional Fly-in Day. Advocates will meet virtually with legislators and staff to discuss important issues, including improving patient access and research funding. Whether you’re a veteran advocate or looking to get involved in legislative advocacy for […]

EMSP Annual Conference 2023

We are glad to invite you to save the date for the EMSP Annual Conference 2023, to be held under the theme of Social Policies between 4-7 May 2023 in Helsinki, Finland. Held […]

2023 RARE Patient Advocacy Summit

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

Dia de la NMO 2023: Argentina

La Asociación de Lucha contra la Esclerosis Múltiple (ALCEM), La Fundación Sumaira y NMO Argentina convocan a la actividad a realizarse el 28 de octubre de manera virtual y con […]

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Autoimmune Association Brain Health Center of the Rockies couch pennies foundation emsp global advocacy alliance National Infusion Center Association Neurology Live Logo Siegel Rare Neroimmune Association
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