When to Call Your Neurologist & What to Say: Advice from a Neurologist
Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. Join us on Thursday, May 28 at 6 PM PT […]
Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. Join us on Thursday, May 28 at 6 PM PT […]
Unisciti a noi il 3 giugno alle ore 18:00 CET per un webinar dedicato al tema 'Salute Mentale e Malattie Rare: Strategie per il Benessere Quotidiano', con la partecipazione della Dott.ssa Emanuela Stoppele dell’Università di Verona. https://us02web.zoom.us/webinar/register/WN_HiLsvF5DR66ArBAK3WkDPw Vivere con una malattia rara può avere un impatto profondo sulla vita quotidiana — dal punto di vista […]
Unisciti a noi per un’importante discussione, “Risonanza magnetica e NMOSD: quando è necessaria, cosa può mostrare e perché è importante”, con la partecipazione della Dott.ssa Rosanna Cortese, neurologa e ricercatrice, […]
You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus, experts from Massachusetts General Hospital/Harvard Medical School, who will […]
Vivir con NMOSD puede afectar muchos aspectos de la vida diaria: física, emocional y socialmente. Únase a TSF LatAm para un importante seminario web, “Vivir bien con NMOSD: Cómo manejar los desafíos físicos, mentales y sociales”, enfocado en ayudar a pacientes y familias a comprender y afrontar mejor estos desafíos. Este programa contará con la […]
Understanding insurance coverage can be overwhelming, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday, June 25 at 5:00 PM PT / 8:00 PM ET […]
Nutrir el cuerpo es fundamental cuando se vive con una enfermedad desmielinizante. Acompáñenos con el Dr. Carlos Navas de Colombia, quien lidera la iniciativa de Inmunonutrición LATAM de LACTRIMS, para conocer las recomendaciones actuales y consejos prácticos sobre nutrición para las personas que viven con enfermedades desmielinizantes. - 14 de julio de 2026 - 7:00 […]
¿Usted o un ser querido vive con MOGAD? Lo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti, del Hospital Alemán de Argentina, quien compartirá las últimas novedades sobre el tratamiento del MOGAD. El Dr. Contentti explicará cómo los resultados de un nuevo ensayo clínico podrían ayudar […]
What happens when one autoimmune or neuroimmune condition isn’t the whole story? For some patients, receiving multiple diagnoses can bring even more questions and uncertainty. Join Dr. Lilyana Amezcua from USC for an accessible conversation about overlapping autoimmune diseases, why multiple diagnoses can occur, and how clinicians approach symptoms that may not fit neatly into […]
When your child is living with a neuroimmune disease, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how […]
¿Usted o un ser querido vive con NMOSD? Lo invitamos a acompañarnos en un webinar especial titulado **"Comprendiendo el anticuerpo AQP4 en NMOSD"**, con la Dra. Pilar Perachino, de Argentina. […]
Steroids can be an important part of treatment for many rare neuroimmune conditions, but what happens when they’re used over a longer period of time? Join Dr. Amy Kunchok for […]