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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
My journey began in 2013 when I was 11 years old. I was experiencing severe symptoms of neuromyelitis optica spectrum disorder, but I wasn’t diagnosed for a number of years. […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On June 8th, 2025, TSF hosted a Patient Day for NMOSD & MOGAD in Washington DC in collaboration with Dr. Benjamin Osborne at the Georgetown University Conference Center (Thomas & […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
My name is Rashmi and I have been living with NMOSD since 2015. I’m sharing my story with all of its ups and downs, tears and smiles, but most importantly, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On June 9, 2025, Elena Damiani, TSF Ambassador for Italy, participated in the EUPATI Patient Academy meeting titled “The Role of Patients in Decision-Making Processes: Awareness, Training, Participation,” held in […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Bonjour, je m’appelle Natasha, j’ai 46 ans, et voici comment la NMOSD (neuromyélite optique) est entrée dans ma vie. Tout a commencé à l’été 2001. J’avais 23 ans et je […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
My name is Rita Ddungu Sembuya and I am from Kampala, Uganda. I am a patient living with neuromyelitis optica (NMO), and I was very pleased to receive an introduction […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
My story with neuromyelitis optica spectrum disorder (NMOSD) began in 2021, although at the time, I had no idea what was happening to me. It started with something subtle yet […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Nobody told me that retirement was going to be so challenging! I was ready to start enjoying the fruits of my labor, when the unexpected happened… As with all things […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, March 29, 2025, we hosted our San Francisco Patient Day for NMOSD & MOGAD at Stanford University– Cardinal Hall. Our in-person event hosted 60+ attendees including patients, caregivers, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 24, 2025 — The Sumaira Foundation is pleased to welcome Dr. Mitzi Joi Williams, board-certified neurologist and MS specialist to join TSF’s international Medical Advisory Board. Mitzi Joi Williams, MD, […]
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