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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Patient, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On March 5, 2016, The Sumaira Foundation hosted its 1st Annual NMO Awareness Gala at The Liberty Hotel Ballroom. We’re proud to declare this event as a huge success and share […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
We are hosting our first black-tie event, NMO Awareness Gala at the beautiful Liberty Hotel Ballroom. Please join us for an evening filled with delicious food and beverages, DJ and dancing, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Please help us give a warm welcome to Gabriela Romanow, Parent Advocate, who will serve as our Community Outreach Manager & Liaison to Neuromyelitis Optica [NMO] organizations worldwide. Gabriela first […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Voices of NMO
In early November 2000, Nick came down with viral symptoms. He was just done eating dinner when he vomited across the kitchen – I was shocked. Up to this point […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On August 20, 2015, we were delighted to host our 2nd fundraiser on the 22nd floor of the iconic Empire State Building at the Linkedin headquarters in New York City. […]
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