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Seattle Patient Day for Rare Neuroinflammatory Disorders

University of Washington 4295 Little Canoe Channel NE, Seattle, WA, United States

We're coming to Seattle! Are you an AE*, CNS Vasculitis, MOGAD*, neurosarcoidosis, NMOSD* or SPS* patient, partner, care-partner, clinician, nurse, researcher and/or advocate from the Pacific Northwest region? You're invited to our event on Saturday, October 18th at the UW Medicine Neurosciences Institute. Join us for a day of education, community, and fun to: Meet […]

Human Collective Project | United Kingdom

Virtual: United Kingdom , United Kingdom

The Human Collective Project (HCP) is a community initiative for people living with NMOSD, MOGAD and other rare neuroimmune diseases, to come together in a safe, confidential and encouraging space. These gatherings are not recorded and allow for everyone to speak openly and honestly without worry. HCP is more about than just a discussion, it's […]

Human Collective Project | Mental Health Mondays

Virtual: United States , United States

The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]

Navigating NMOSD in Canada

Virtual: Canada , Canada

Calling Canadians impacted by NMOSD: you're invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada. Join us on Wednesday, November 5th at 7 PM EST for a live presentation and discussion with Dr. Dalia Rotstein, neurologist at The University of Toronto and a globally-recognized expert […]

Toronto Patient Day for Rare Neuroinflammatory Disorders

The Conference Centre at the OBA 20 Toronto Street Toronto, ON, Canada

We're coming to Toronto! Are you an AE*, MG*, MOGAD* or NMOSD* patient, partner, care-partner, clinician, nurse, researcher and/or advocate in Canada? You're invited to our event on Saturday, November 8th. Join us for a day of education, community, and fun to: Meet local patients, partners, care-partners and clinicians Ask experts questions in real time […]

Κατανόηση της MOGAD και της σημασίας της συμμετοχής των ασθενών σε κλινικές δοκιμές

Virtual: Global

Εσείς ή κάποιος που αγαπάτε επηρεάζεστε από το MOGAD; Σας προσκαλούμε να συμμετάσχετε στο επερχόμενο πρόγραμμά μας αφιερωμένο στην MOGAD τη Δευτέρα 10 Νοεμβρίου στις 6 μ.μ. EET. Θα συμμετάσχουν ο Καθηγητής Νικόλας Γρηγοριάδης και η Δρ. Έλμα Ευαγγελοπούλου, οι οποίοι θα συζητήσουν τα συμπτώματα, τις θεραπείες και τις κλινικές δοκιμές της MOGAD. Οι συμμετέχοντες […]

Human Collective Project | Caregivers

Virtual: Global

The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]

Het belang van deelname van mensen met MOGAD aan onderzoek, met als doel de ziekte beter te begrijpen en behandelen

Virtual: Amsterdam , Netherlands

Bent u of kent u iemand die getroffen is door MOGAD? U bent uitgenodigd voor een webinar over MOGAD en klinische studies op 18 november. We zullen worden vergezeld door prof. Barbara Willekens en prof. Guy Laurys, die een overzicht geven van MOG-antilichaamziekte, klinische studies en hoe patiënten kunnen deelnemen aan MOG-gerelateerde klinische studies voor […]

3° Giornata dedicata da malattie neuroimmunologiche rare – Roma

Nazionale Spazio Eventi (Roma) Via Palermo, 10, Roma, Italy

TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune, miastenia grave, MOGAD e NMOSD, i loro caregiver e i medici interessati a queste patologie a partecipare a questa giornata di formazione, convivialità e divertimento. In collaborazione con il Dott. Raffaele Iorio del Policlinico Universitario Agostino Gemelli e in partnership con […]

Human Collective Project | Mental Health Mondays

Virtual: United States , United States

The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]

3ème week-end Patients et Aidants NMOSD & MOGAD – Lyon

Mama Shelter Lyon 13 Rue Domer, Lyon, France

TSF France, en partenariat avec le MIRCEM, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! L'évènement, complétement gratuit, aura lieu au Mama Shelter de Lyon, rue Domer, les 29 et 30 novembre 2025. Nous sommes ravis d'être accompagnés par les experts […]

Human Collective Project | Mental Health Mondays

Virtual: United States , United States

The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]

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