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Posted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
The first time NMO hit me was on the evening before Thanksgiving in 2010… I clearly remember it because my wife and I were on holiday in the United States. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 16, 2021 – The Sumaira Foundation for NMO (TSF) is pleased to announce the Light the Way Forward Grant made possible by a research grant from Viela Bio. Viela […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Nicole was a first-grade teacher and chorus director in a Title 1, low-income school district, where she was a beloved, appreciated, and award-winning professional… In May of 2017, Nicole thought […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and […]
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