Posted by: The Sumaira Foundation in News & Announcements
June 22, 2020 — The Sumaira Foundation for NMO is pleased to present its newest ambassadors to the TSF family. The ambassador team consists of 20 ambassadors who represent 15 states and 3 countries. The TSF ambassadors volunteer their time to lead the organization’s mission in their territories to raise awareness for NMO / MOG, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 31, 2020 — The Sumaira Foundation for NMO is pleased to present the results of the NMO community’s outreach efforts to have March declared “NMO Awareness Month” across the nation. Movement founder and TSF Chief Community Relations Officer, Gabriela Romanow, is thrilled with the response from the governors, and even more, from the NMO […]
Read MorePosted by: The Sumaira Foundation in Events
The 4th Annual NMO Awareness Gala SATURDAY, MARCH 23, 2019 | DOORS OPEN AT 7:00PM MANDARIN ORIENTAL, GRAND BALLROOM (BOSTON, MA) You’re invited to our enchanted forest-themed annual event so get your pixie dust + fairy vibes ready for our most fabulous fundraiser yet! Proceeds will be awarded to TSF Spark Grant recipients for research […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Liz has had NMO for 25 years now. She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much of it when, at age 11, the “migraine” around her left eye was so bad that she thought she needed glasses. But obligingly, her mother […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, wisdom, and incredible strength. Be inspired with the video below! Megan’s story marks our 20th Voices of NMO story and the 1st video submission. To […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was diagnosed with NMO on March 10, 2015… An MRI that was done while I was receiving inpatient care for sudden paralysis of my lower limbs showed a spinal lesion on vertebrae C4 through C6… After all the unanswered questions, frustration, doctors appointments, blood work, imaging, crying, and terrifying Google searches, I finally had […]
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