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Spanish Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I […]
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Bonjour à tous, je m’appelle Elodie. J’ai prochainement 37 ans. J’habite à Orp-Jauche, Brabant wallon, Belgique. En 2008, j’ai fait ma première poussée. Une nevrite optique. A l’époque, j’avais été […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient
On April 29, 1984, I landed at Boston’s Logan Airport with two suitcases and a seven-year-old girl holding my hand. This trip concluded a process that had begun three years […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD. Actually, there were two of them in the same neuroimmunology […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 22, 2022 – The Sumaira Foundation is pleased to welcome Pr. Friedemann Paul of Charité – Universitätsmedizin Berlin (Germany) to join TSF’s medical advisory board. Pr. Friedemann Paul Friedemann Paul […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was born and raised in Cuba where I played outside, ran, and enjoyed time with my friends. In my healthy teen years, I didn’t think I’d ever become chronically […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 16, 2022 – The Sumaira Foundation (TSF) is please to announce a partnership with The Assistance Fund (TAF) to help people living in the US with neuromyelitis optica spectrum […]
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On July 28, 2022, TSF was joined by 100 friends of the Foundation to celebrate 8 years of illuminating the darkness of NMOSD and MOGAD at The Envoy Hotel’s Lookout […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
BOSTON, MA, August 4, 2022 – The Sumaira Foundation (TSF), a nonprofit organization focused on the rare neuroimmune diseases of NMOSD and MOGAD, is pleased to announce that it is […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened […]
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