Posted by:
The Sumaira Foundation
in Blog Posts, News & Announcements
WASHINGTON, May 26, 2022—The PAN Foundation and The Sumaira Foundation (TSF) today announced they are launching a new partnership to help people living with neuromyelitis optica spectrum disorder (NMOSD), providing up to $9,600 per year in financial assistance and support services for patients and their caregivers or loved ones. Neuromyelitis optica spectrum disorder (NMOSD), also […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
My name is Christy and I’ve been fighting this disease without knowing what I was up against since before 2008… I started calling this thing my “venom” because it reminded me of a venomous character that took over my entire being without letting go. My venom’s name is NMOSD (neuromyelitis optica spectrum disorder). It relentlessly […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, TM, Voices of NMO
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
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Posted by:
The Sumaira Foundation
in Events
Thank you to everyone who made our NMO picnic in the Park such a wonderful day! We loved kicking off autumn at the Parkman Bandstand in Boston Common, especially alongside our NMO superheroes, families, friends + and the kind folks at Shake Shack. View album
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