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Posted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
It was March 2009. I was 39 years old. One morning, I woke up feeling significant pressure behind my left eye. I felt it mostly in the right corner of […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, ON, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
FUNDING OPPORTUNITY ANNOUNCEMENT In 2020, TSF will be awarding up to 4 research grants, each with a maximum award of $25,000. Frequently Asked Questions Who is eligible for the grant […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 13, 2019 – The Sumaira Foundation for NMO (TSF) and The MOG Project announced their partnership on November 13, 2019 in their shared mission to raise awareness for myelin […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, ON, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried […]
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