Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
Read MorePosted by: The Sumaira Foundation in Events
On March 25, 2017, The Sumaira Foundation for NMO hosted its 2nd Annual NMO Awareness Gala at the Mandarin Oriental, Boston. 3 REASONS YOU MADE IT A ROARING SUCCESS 2X Awareness: ticket sales doubled from 2016 $16k+ raised, a 60% increase from 2016 25+ donors, sponsors & volunteers contributed to our collective impact Click here for […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in Events
We are hosting our first black-tie event, NMO Awareness Gala at the beautiful Liberty Hotel Ballroom. Please join us for an evening filled with delicious food and beverages, DJ and dancing, photos, and a swag bag filled with amazing goodies all while raising awareness for Neuromyelitis Optica. Two raffle tickets will be given to every attendee upon […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Please help us give a warm welcome to Gabriela Romanow, Parent Advocate, who will serve as our Community Outreach Manager & Liaison to Neuromyelitis Optica [NMO] organizations worldwide. Gabriela first became invested in Neuromyelitis Optica when her son was diagnosed in 2014. Since then, she has volunteered her time and effort towards raising significant funds […]
Read MorePosted by: The Sumaira Foundation in Events
On August 20, 2015, we were delighted to host our 2nd fundraiser on the 22nd floor of the iconic Empire State Building at the Linkedin headquarters in New York City. With over 50 guests in attendance, dressed in their best, this event as a GREAT SUCCESS! We were able to raise $2,650 that will be […]
Read MorePosted by: The Sumaira Foundation in Media & Press
When 25-year-old Sumaira Ahmed got a call from her doctor’s officelast May, she was shattered by the troubling news. “You don’t have cancer,” said a voice from the other end. In normal circumstances, this would be considered good news—but not for this Boston resident. “I was lying on the floor, broken, crying over why I […]
Read MorePosted by: The Sumaira Foundation in Events
Join us for an evening of cocktails, networking and awareness of Neuromyelitis Optica on Thursday, August 20th at the monumental Empire State Building. The ticket cost will cover entry, drinks, appetizers and a swag bag. We hope to see you there! Dress to impress. To purchase tickets, click link below. Space is limited! See you […]
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