Tag: mental health

HCP Grupo de Apoyo Pacientes enfocado en salud mental + charla

Posted by: The Sumaira Foundation in

La salud mental es una parte muy importante de cualquier persona y mas si se tiene un diagnóstico de una condición neuroinmune rara. Sin embargo esta parte de la salud […]

Cognitive and psychopathological features of neuromyelitis optica spectrum disorder and myelin oligodendrocyte glycoprotein antibody-associated disease: A narrative review

Posted by: The Sumaira Foundation in

The psychological burden of NMOSD – a mixed method study of patients and caregivers

Posted by: The Sumaira Foundation in

Quantifying the relationship between disability progression and quality of life in patients treated for NMOSD: Insights from the SAkura studies

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The prevalence of depression, anxiety, and sleep disturbances in patients with neuromyelitis optica spectrum disorders (NMOSD): A systematic review and meta-analysis

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Maggie’s NMO Story – Finding Miracles in the Micro-Moments

Posted by: The Sumaira Foundation in Caregiver, NMOSD, Professional, Voices of NMO

I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]

Letitia’s NMO Story – Strength Gained from the Madness Survived

Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO

My name is Letitia and I am a 22-year-old South African NMO patient. My story began on the 26th of December 2017, Boxing Day… I had been suffering with an […]