Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Shanice. I was born and raised in Jamaica and now reside in Toronto in Canada. I am a second-year medical student aspiring to be a physician in obstetrics/gynecology. I have always considered myself to be a very healthy individual with a very pepping personality. When I started medical school in 2017 in […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 8, 2021 — Since 2019, our small but mighty and growing community has seen three FDA-approved therapies. At TSF, we’re huge advocates for shared-decision making between patients and their physicians, especially when it comes to deciding what treatment(s) to opt for. The Sumaira Foundation for NMO is pleased to announce its launch the first-of-its-kind […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and advocates in which a variety of disease-related topics will be discussed. Our premiere webinar will feature the nation’s first NMOSD patient who successfully gave birth […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents had a myriad of physical and mental illnesses throughout my whole life, which seemed to be getting worse as the years went on. My mother […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Freshman year of college is a time to form your sense of identity, but when I started school, I thought that forming this ‘new’ me meant dying my hair blue, not being diagnosed with neuromyelitis optica… On the night of September 27, 2017, I stayed up all night in my small dorm room coughing, with […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
It started with a never-ending headache… Click the image below to watch Chasity’s video in which she describes her experience with optic neuritis. Although she has lost a significant amount of vision, Chasity believes that everything happens for a reason and is grateful to still be able to see her children every day through her […]
Read MorePosted by: The Sumaira Foundation in Caregiver, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began like any other but shortly after, Addie came down with a fever. We monitored it and were able to keep the fever down with Tylenol. […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 18, 2020 — SRNA is proud to collaborate with The Sumaira Foundation for NMO, Connor B. Judge Foundation, and The Guthy-Jackson Charitable Foundation to launch ABCs of NMOSD, a 10-part education podcast series to share knowledge about neuromyelitis optica spectrum disorder (NMOSD) premiering on February 24, 2020 at 12:OO PM EST. This education series is […]
Read MorePosted by: The Sumaira Foundation in Events
On behalf of Harvard Medical School, Dr. Michael Levy and Dr. Marcelo Matiello, neurologists at Massachusetts General Hospital and course directors, hosted the inaugural continuing medical education program, “Autoimmune Neurology”, on Friday, October 4, 2019. The CME welcomed guest of honor, Dr. Vanda Lennon of the Mayo Clinic and 40+ physicians from the New England […]
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