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Posted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Liz has had NMO for 25 years now. She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Thank you to our fabulous guests, featured speakers Drs. Dean Cestari and Marcelo Matiello, Chef Bouley + the Bouley Culinary Team for helping us raise NMO awareness us at The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The 3rd Annual NMO Awareness Gala SATURDAY, MARCH 24, 2018 | DOORS OPEN AT 7:00PM MANDARIN ORIENTAL, GRAND BALLROOM (BOSTON, MA) You’re invited to the first-ever Bollywood theme* black-tie gala […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Thank you to everyone who made the 2nd New England NMO Patient Day a spectacular day! Special thanks to: Brigham and Women’s Hospital Massachusetts General Hospital The Guthy-Jackson Charitable Foundation […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Find your legislators here: https://whoismyrepresentative.com If you have additional questions or need help, please contact Gabriela
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her […]
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