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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On February 9, 2019, Barre Groove hosted TSF’s first-ever charity event, POM for NMO, to raise awareness and money for neuromyelitis optica. We raised over $500, got a killer workout, and 10 […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nothing can fell Marie. No matter the punches that NMO throws, Marie just gets up again and keeps on going. A strong young woman who has learned to live with […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On October 11, 2018, The Sumaira Foundation for NMO (TSF) announced its partnership with the Transverse Myelitis Association (TMA). Both organizations specialize in raising awareness for rare neuro-immune disorders while […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation […]
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