Tag: aqp4

Fred’s NMO Story – Retirement… Not What I Thought It Would Be!

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

Nobody told me that retirement was going to be so challenging! I was ready to start enjoying the fruits of my labor, when the unexpected happened… As with all things […]

Lety’s Story – It’s My Life; Not NMOSD’s

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

It all began in June 2020, the peak of when COVID-19 had finally hit Texas… Allow me to backtrack before I began with my symptoms for a bit: I have […]

Nick’s Story: How I Turned Diagnosis into Advocacy: Navigating NMOSD, MS and LGBTQIA+ Representation

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

On January 30, 2023, I was diagnosed with relapsing-remitting multiple sclerosis following the onset of nearly complete vision loss in my left eye. That day marked a profound turning point […]

Zhila Maghbooli (Iran) named 1st awardee of TSF’s Diagnostics Fellowship

Posted by: The Sumaira Foundation in News & Announcements

January 15, 2024 — The Sumaira Foundation is thrilled to announce Dr. Zhila Maghbooli, from the Multiple Sclerosis Research Center of Tehran University of Medical Sciences, Iran, as the first […]

MOG-IgG in NMO and related disorders: a multicenter study of 50 patients. Part 4: Afferent visual system damage after optic neuritis in MOG-IgG-seropositive versus AQP4-IgG-seropositive patients

Posted by: The Sumaira Foundation in

MOG-IgG in NMO and related disorders: a multicenter study of 50 patients. Part 1: Frequency, syndrome specificity, influence of disease activity, long-term course, association with AQP4-IgG, and origin

Posted by: The Sumaira Foundation in

Hali’s NMO Story – No Disease Will Ever Wear Me Down

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on […]

Welcome Pr. Jacqueline Palace + Pr. Sarosh Irani

Posted by: The Sumaira Foundation in News & Announcements

January 21, 2022 – The Sumaira Foundation is pleased to welcome Pr. Jacqueline Palace and Pr. Sarosh Irani from University of Oxford University to its Medical Advisory Board Jacqueline Palace, […]

Shanice’s NMO Story – Caffeine Withdrawal or Something Serious?

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

My name is Shanice. I was born and raised in Jamaica and now reside in Toronto in Canada. I am a second-year medical student aspiring to be a physician in […]

Paige’s NMO Story – A Baby & A New Diagnosis

Posted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO

My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look […]