Posted by: The Sumaira Foundation in NMO, Voices of NMO
Nicole was a first-grade teacher and chorus director in a Title 1, low-income school district, where she was a beloved, appreciated, and award-winning professional… In May of 2017, Nicole thought she had pink eye, got antibiotics, and went to school. On a Friday, she taught, directed a chorus concert, and saw her mother later in […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 8, 2021 — Since 2019, our small but mighty and growing community has seen three FDA-approved therapies. At TSF, we’re huge advocates for shared-decision making between patients and their physicians, especially when it comes to deciding what treatment(s) to opt for. The Sumaira Foundation for NMO is pleased to announce its launch the first-of-its-kind […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and advocates in which a variety of disease-related topics will be discussed. Our premiere webinar will feature the nation’s first NMOSD patient who successfully gave birth […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
My name is AnneMarie and my journey with NMO began in 2002 when I was just 16 years old… One April morning, I woke up with a stabbing pain in my lumbar spine which was getting progressively worse. My mom rushed me to the local emergency room where they had taken x-rays and done bloodwork. […]
Read MorePosted by: The Sumaira Foundation in Events
On June 22, 2019, The Sumaira Foundation for NMO hosted its inaugural NMO Wellness Day, a day-long community event oriented to foster discussions around health and wellness as they relate to neuromyelitis optica. This event was sponsored by Alexion Pharmaceuticals, Inc. with delicious + healthy lunch provided by B.GOOD at Spaulding Rehabilitation Hospital. (Click on the images below […]
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