Home » advocacy
Tag: advocacy
Posted by:
The Sumaira Foundation
in News & Announcements
On Saturday, June 15, 2024, we hosted our Cleveland Patient Day for NMOSD & MOGAD in collaboration with Dr. Amy Kunchok, Dr. Mary Rensel and Dr. Justin Abbatemarco at Cleveland […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
On Saturday, March 9, 2024, we hosted our New England Patient Day for NMOSD & MOGAD in Boston in collaboration with Dr. Michael Levy and Dr. Marcelo Matiello of Massachusetts […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
Read
More
Posted by:
The Sumaira Foundation
in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
It was December 2019. I struggled almost every day with tension headaches (eyes and nose). My primary care doctor suspected I had migraines and prescribed me with migraine medication. I […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
The Sumaira Foundation for NMO (TSF) is proud to announce the launch of the TSF Ambassador Program by introducing the inaugural ambassador, Phil Tucker. Phil is an NMO warrior from […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Meet the happy workaholic, Kelly Ann, an ambitious business + LinkedIn coach, podcaster and luxury brand consultant from California who candidly shares the ups and downs of her NMO story […]
Read
More