RESUMEN DEL EVENTO | Patient Day en Miami

Posted by: The Sumaira Foundation in Community, Events, News & Announcements

El sábado 26 de septiembre de 2026, TSF organizó un Patient Day en Miami, Florida, dedicado a las enfermedades neuroinflamatorias raras, en colaboración con la Universidad de Miami y celebrado en el Sunny Hotel.

Nuestro evento presencial reunió a más de 100 asistentes, entre ellos pacientes, cuidadores, profesionales de la salud, defensores de pacientes y representantes de la industria, vinculados o involucrados en las siguientes enfermedades:

Polineuropatía desmielinizante inflamatoria crónica (CIDP)
Miastenia gravis (MG)
Enfermedad asociada a anticuerpos contra la glicoproteína de mielina de oligodendrocitos (MOGAD)
Trastorno del espectro de la neuromielitis óptica (NMOSD)

Nos enorgulleció contar con la colaboración de la MG Holistic Society.

HAZ CLIC AQUÍ O EN EL BOTÓN DE ABAJO PARA VER NUESTRA GALERÍA DE FOTOS

HAZ CLIC AQUÍ O EN EL BOTÓN DE ABAJO PARA VER LAS GRABACIONES

CONOZCA A NUESTROS EXPERTOS DESTACADOS

Ernesto, Dr. Flavia Nelson, Dr. Idelis Martinez, Dr. Melissa Fellman, Dr. Jeffrey Hernandez
Dr. Idelis Martinez, Dr. Melissa Fellman, Dr. Jeffrey Hernandez
Taylor Macey, Dr. Leticia Tornes, Dr. Melissa Fellman, Dr. Amy Yu Laitinen, Dr. Kottil Rammohan, Dr. Flavia Nelson, Sumaira Ahmed
Taylor Macey, Dr. Leticia Tornes, Dr. Melissa Fellman, Dr. Amy Yu Laitinen, Dr. Kottil Rammohan, Dr. Flavia Nelson
Taylor Macey, Dr. Leticia Tornes, Dr. Melissa Fellman, Dr. Amy Yu Laitinen, Dr. Kottil Rammohan, Dr. Flavia Nelson
Taylor Macey, Dr. Melissa Fellman, Dr. Mirla Avila
Dr. Amy Yu Laitinen, Dr. Amit Bar-Or
Dr. Mirla Avila, Dr. Amy Yu Laitinen, Taylor Macey
Dr. Mirla Avila

Dra Mirla Avila Grove Neurology / First Choice Neurology (NMOSD, MOGAD, MG)
Dr Amit Bar-Or University of Pennsylvania (NMOSD, MOGAD)
Dra Melissa Fellman University of Miami (MG)
Dr Jeffrey Hernandez University of Miami (NMOSD)
Dra Amy Yu Laitinen Baptist Health (NMOSD, MOGAD)
Dra Idelis Martinez University of Miami (MS, autoimmune neurological disorders)
Dra Flavia Nelson University of Miami (MS, CNS autoimmune disorders, neuroimmunological disorders)
Dr Kottil Rammohan University of Miami (MS, demyelinating disorders)
Dra Letitcia Tornes University of Miami (NMOSD)

CONOZCA A NUESTROS PANELISTAS: PACIENTES Y CUIDADORES

Karla, Ernesto, Raymundo, Marie, Cynthia, Patricia
Cynthia, Patricia
Ernesto, Raymundo, Marie, Cynthia, Patricia
Sofia, Tiffani, Deric, Andre, Taylor
Patricia, Cynthia
Taylor, Amy, Sofia, Tiffani, Andre, Deric
Amy, Sofia, Tiffani
Deric, Andre

ESTE EVENTO FUE POSIBLE GRACIAS AL APOYO DE:

Amgen (patrocinador latino), Alexion, argenx, UCB, y Genentech

Un agradecimiento especial a nuestros voluntarios: Imani Joval, Steveens, Claudiu, Suzanne, Tim, Denise

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