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July 13, 2020 — The Sumaira Foundation for NMO (TSF) and the National Infusion Center Association (NICA) are pleased to announce their partnership as of July 2020.
The Sumaira Foundation for NMO (TSF) is a 501(c)(3) organization founded by an NMO patient, and is dedicated to generating global awareness of neuromyelitis optica spectrum disorder (NMOSD), fundraising to help find a cure, and creating a community of support for patients + their caregivers.
The National Infusion Center Association (NICA) is a non-profit advocacy organization dedicated to improving access to provider-administered treatments through advocacy, education, and resource development. The organization’s goal is to ensure that the nation’s sickest and most vulnerable citizens can access the high-quality care they need in a safe and economical community-based care setting.
The organization’s Education & Policy Coordinator, Kaska Watson, MPH, CHES, shares,
“NICA believes in bringing together all of our resources and talents to connect patients with the educational content and resources they need to empower them to better manage their condition and advocate for their access to care. We collaborate with our network of decision-makers and infusion providers to develop all-win solutions to national patient access challenges.”
TSF’s founder and executive director, Sumaira Ahmed, hopes that by partnering with the infusion-based organization, NMOSD / MOG patients, caregivers, and providers feel comforted by the wide range of resources offered by NICA,
“Between the infusion center locator, blog posts written by real patients, educational and advocacy tool kits for both the patient and medical communities, NICA is a one-stop resource shop for our community. Any person or entity who provides a source of comfort to our community has my utmost respect and appreciation”.
With contributions from TSF, Dr. Michael Levy, and the National Organization for Rare Disorders (NORD), NICA recently released an infusion guide for NMOSD patients. To access the guide, click on this link: Infusion Guide for NMOSD