3ème week-end Patients et Aidants NMOSD & MOGAD – Lyon
TSF France, en partenariat avec le MIRCEM, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! L'évènement, […]
TSF France, en partenariat avec le MIRCEM, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! L'évènement, […]
The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD, seronegative NMOSD, and MOGAD in Canada. We will be joined by Dr. Alexandra Muccilli from the University of Toronto, […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles. Join us on December 16th at 7 PM EST for a special webinar […]
En compañía de una psicóloga, una neurologa (ambas embajadores de TSF) y un psiquiatra, trataremos temas enfocados en salud mental. Una parte muy importante pero a veces ignorada por pacientes y cuidadores, del tratamiento integral que necesitan los pacientes de enfermedades neuroinmunes raras.
Siz veya sevdiğiniz biri MOG antikor hastalığından etkileniyor mu? 23 Aralık Salı günü saat 16:00'da MOGAD'a özel bir web seminerine katılmanızı rica ediyoruz. Prof. Dr. Murat Kürtüncü, Prof. Dr. Murat […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Los cuidadores de pacientes con enfermedades neuroinmunes como NMOSD, MOGAD, etc.. también necesitan un espacio para expresar sus sentimientos y emociones. Este espacio es para los cuidadores y será dirigido […]
¡TSF llega a Puerto Rico el sábado 24 de enero 2026! Invitamos a pacientes, cuidadores, médicos, enfermeros, investigadores y defensores de los pacientes a unirse a nosotros en un día […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
