SRNA Rare Disease Day
Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.
Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.
Join autoimmune patient advocates nationwide on March 29, 2023, for the National Coalition of Autoimmune Patient Groups’ first virtual Congressional Fly-in Day. Advocates will meet virtually with legislators and staff to discuss important issues, including improving patient access and research funding. Whether you’re a veteran advocate or looking to get involved in legislative advocacy for […]
Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 Collaboration is the foundation of success in rare disease research. Knowing who to work with, what strategies to use, and how to prepare for discussions can help you overcome barriers posed by small populations and limited funding. At the Rare […]
We are glad to invite you to save the date for the EMSP Annual Conference 2023, to be held under the theme of Social Policies between 4-7 May 2023 in Helsinki, Finland. Held as an in-person event co-hosted by the Finnish MS Society (Neuroliito), the conference will offer the latest MS developments, expert insights, and networking with the community. If […]
Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.
