CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 […]
You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 […]
Vivir con NMOSD puede afectar muchos aspectos de la vida diaria: física, emocional y socialmente. Únase a TSF LatAm para un importante seminario web, “Vivir bien con NMOSD: Cómo manejar […]
Understanding insurance coverage can be overwhelming, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday, June 25 at 5:00 PM PT / 8:00 PM ET […]
Nutrir el cuerpo es fundamental cuando se vive con una enfermedad desmielinizante. Acompáñenos con el Dr. Carlos Navas de Colombia, quien lidera la iniciativa de Inmunonutrición LATAM de LACTRIMS, para […]
¿Usted o un ser querido vive con MOGAD? Lo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti, del Hospital Alemán de […]
What happens when one autoimmune or neuroimmune condition isn’t the whole story? For some patients, receiving multiple diagnoses can bring even more questions and uncertainty. Join Dr. Lilyana Amezcua from USC for an accessible conversation about overlapping autoimmune diseases, why multiple diagnoses can occur, and how clinicians approach symptoms that may not fit neatly into […]
Caregivers are an essential part of the rare neuroimmune community—but caring for someone you love can come with uncertainty, stress, and challenges that are not always easy to talk about. When you’re focused on supporting someone else, it can be easy to put your own needs on the back burner. Join Dr. Daniel Rohe from […]
When your child is living with a neuroimmune disease, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how […]
En enfermedades desmielinizantes, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción […]
En enfermedades desmielinizantes, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. Esta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía […]
¿Usted o un ser querido vive con NMOSD? Lo invitamos a acompañarnos en un webinar especial titulado **"Comprendiendo el anticuerpo AQP4 en NMOSD"**, con la Dra. Pilar Perachino, de Argentina. En esta sesión, la Dra. Perachino explicará qué es el anticuerpo AQP4, cuál es su papel en el NMOSD, cómo contribuye al diagnóstico de la […]
El manejo del Trastorno del Espectro de la Neuromielitis Óptica (NMOSD) ha estado centrado de forma casi exclusiva en el control del brote agudo y la inmunosupresión. Sin embargo, el […]
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