Choose Your Language:
Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
September 2021 marked the perfect storm for NMO – a combination of a long-term infection and a viral illness. During the peak of the COVID lockdown on September 1, 2021, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My journey began in 2013 when I was 11 years old. I was experiencing severe symptoms of neuromyelitis optica spectrum disorder, but I wasn’t diagnosed for a number of years. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Rashmi and I have been living with NMOSD since 2015. I’m sharing my story with all of its ups and downs, tears and smiles, but most importantly, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Bonjour, je m’appelle Natasha, j’ai 46 ans, et voici comment la NMOSD (neuromyélite optique) est entrée dans ma vie. Tout a commencé à l’été 2001. J’avais 23 ans et je […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Rita Ddungu Sembuya and I am from Kampala, Uganda. I am a patient living with neuromyelitis optica (NMO), and I was very pleased to receive an introduction […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My story with neuromyelitis optica spectrum disorder (NMOSD) began in 2021, although at the time, I had no idea what was happening to me. It started with something subtle yet […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nobody told me that retirement was going to be so challenging! I was ready to start enjoying the fruits of my labor, when the unexpected happened… As with all things […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
The Beginning of the Dream: Why I Chose Neuroimmunology During my daily work as a clinical pathologist specializing in immunology at the Faculty of Medicine, Cairo University (Kasr Al-Ainy), I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
2018 started out great. I was a senior in high school, applying to universities and getting excited about high school prom. I was working at a fast food restaurant and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Ghanaian-born and UK-raised, I was diagnosed with aquaporin-4 positive (AQ4+) neuromyelitis optica spectrum disorder (NMOSD) in May 2023, which was completely life-changing, to say the least! All of a sudden, […]
Read More
