Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see a neurologist at a public hospital, but there were long wait times. Knowing I needed answers, I chose to go to a private hospital. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hi, my name is Noelani. I am 30 years old, was born and raised in Hawaii but currently reside in Nevada! Looking back, there were signs throughout my childhood of NMO, bowel/urinary incontinence, spurts of tingles, and needles in my extremities. In my early teens, I had episodes of numbness in my left arm and […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
It started innocuously. In 2008 we moved to Ottawa with my employer for my career in pest control. On a gray, cloudy but humid day, I was out removing a wasp nest for a client. She pointed to the nest hanging off a tree branch, about 10 feet away, and I thought to myself, “not […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In August 2019, while at work, I began to notice a change in my right eye. I thought it was the contacts I was wearing, so I removed them. Still, my vision felt strange. I realized that I was going blind and needed to go to an eye doctor. The eye doctor mentioned multiple sclerosis […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my second daughter earlier that year. As nice as that should have been, I was probably at one of the lowest points in my life. I’d been diagnosed with post-natal depression a few months earlier. In […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took her to the ER, thinking she simply had a virus and needed some fluids… that’s when our world turned upside down. Jaidyn’s headaches were getting […]
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