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Posted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation announces the launch of TSF Europe, strengthening its commitment to communities living with rare neuroimmune and related disorders across Europe
Brussels, Belgium – September 10, 2026 – The Sumaira Foundation (TSF), an international organization dedicated to supporting people living with rare neuroimmune and related disorders, announces the launch of TSF Europe, an initiative aimed at strengthening support and representation for communities across Europe.
With over 40 ambassadors across 15 European countries, TSF Europe builds on an active, global community of patients, caregivers, healthcare professionals and advocates. TSF aims to connect people across countries, facilitate sharing experiences and knowledge and amplify a stronger European voice for people impacted by and researching these conditions.
TSF Europe builds on the Foundation’s growing presence across the continent, including TSF France, established in 2023, and TSF Italia, established in 2024. In 2026, TSF further strengthened its European presence through the establishment of TSF Europe in Brussels, Belgium, serving as the legal and operational hub for TSF Europe, the Foundation’s pan-European activities and collaborations.
Through TSF Europe, the Foundation seeks to raise awareness, support communities, advance research and advocate for better policies on behalf of patients. These efforts are rooted in a collaborative approach that places patients and their experiences at the heart of TSF initiatives across Europe.
This work benefits from the expertise of TSF’s international Medical Advisory Board, chaired by Professor Michael Levy at Harvard Medical School/Mass General Brigham and comprising leading researchers and clinicians from around the world, including Professor Friedemann Paul, neurologist at Charité – Universitätsmedizin Berlin and recognized expert in the field of neuroimmune disorders.
“The launch of TSF Europe is great news for physicians and scientists treating and researching patients with devastating autoimmune neurological conditions such as NMOSD, MOGAD, MG and others – and, of course, for those having to manage their lives with these diseases. TSF Europe will help to strengthen collaborations, raise awareness and ensure that patients have a voice in the field of rare neuroimmune diseases across Europe. Moreover, TSF Europe will liaise with other stakeholders, including European funding agencies, and allocate more research funds to these disorders. I am very proud to serve as an advisor to The Sumaira Foundation and support the expansion of TSF’s footprint to another continent,” – Professor Friedemann Paul, Medical Advisory Board, The Sumaira Foundation.
Access to reliable and relevant information is also a priority. TSF offers a resource library available in 28 languages, including patient guides, webinars and educational tools designed to support people at different stages of their disease journey.
“With TSF Europe, we want to shine a light on rare neuroimmune and related disorders and strengthen connections between the people and organizations working across Europe on these conditions. By bringing together patients, doctors, researchers, other healthcare professionals, advocates and partners, we will share knowledge, foster meaningful collaboration and create greater opportunities to improve understanding, support and outcomes for people impacted by these conditions,” Sumaira Ahmed, Founder and Executive Director, The Sumaira Foundation.
Through TSF Europe, The Sumaira Foundation continues its mission to connect, support and give a voice to people living with rare neuroimmune and related disorders, while helping advance awareness, advocacy and research across Europe.
For more information about TSF Europe or to connect with a TSF Ambassador in your country, visit www.sumairafoundation.org or email [email protected].
About The Sumaira Foundation
The Sumaira Foundation (TSF) is a global nonprofit organization dedicated to raising awareness of rare neuroimmune and related disorders, building communities of support for patients and their caregivers, supporting and leading research, and advocating on behalf of patients. Founded in 2014 by Sumaira Ahmed following her diagnosis with NMOSD, TSF works to ensure that people living with rare neuroimmune conditions and related disorders have access to information, community, advocacy, and opportunities to contribute to research.
The Sumaira Foundation Europe
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