Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. Join us on Thursday, May 28 at 6 PM PT / 9 PM ET for a practical, patient-friendly webinar with Dr. Stacey Clardy, a leading neurologist, who will walk through when it’s important to contact […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Unisciti a noi il 3 giugno alle ore 18:00 CET per un webinar dedicato al tema 'Salute Mentale e Malattie Rare: Strategie per il Benessere Quotidiano', con la partecipazione della Dott.ssa Emanuela Stoppele dell’Università di Verona. https://us02web.zoom.us/webinar/register/WN_HiLsvF5DR66ArBAK3WkDPw Vivere con una malattia rara può avere un impatto profondo sulla vita quotidiana — dal punto di vista […]
Understanding insurance coverage can be overwhelming, especially when treatment decisions are impacted by policies like step therapy. Join us Monday, June 8 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. In […]
Unisciti a noi per un’importante discussione, “Risonanza magnetica e NMOSD: quando è necessaria, cosa può mostrare e perché è importante”, con la partecipazione della Dott.ssa Rosanna Cortese, neurologa e ricercatrice, il 9 giugno alle ore 19:00 CET. https://us02web.zoom.us/webinar/register/WN_hBD6r4NWSP-8e6dLtPq2vA La risonanza magnetica (MRI) svolge un ruolo fondamentale nella diagnosi e nel monitoraggio dell’NMOSD, ma molti pazienti […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Montreal and the province of Quebec! We're coming to Montreal! Are you or your loved one impacted by: CIDP*, IgG4-RD*, MG*, MOGAD* or NMOSD*? You're invited to our event on Saturday, June 13th. Join us for a day of education, community […]
À tous les patients et aidants touchés par des maladies neuro-inflammatoires rares à Montréal et dans la province de Québec! Montréal nous voilà ! Vous ou l'un de vos proches est touché par : la CIDP*, l'IgG4-RD*, la MG*, la MOGAD* ou la NMOSD* ? Vous êtes les bienvenus à notre événement le samedi 13 […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus, experts from Massachusetts General Hospital/Harvard Medical School, who will […]
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! We're coming to Rochester! Are you or your loved one impacted by: AE*, CIDP*, MG*, MOGAD*, NMOSD*, or SPS*? You're invited to our event on Saturday, June 20th. Join us for a day of education, community […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
