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Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
We’re celebrating our NMO superheroes as we kick off the school year this autumn! This will mark our 1st community event for children, teens, and young adults with NMO patients […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
We’re looking for 3-4 bright, passionate, and motivated individuals to join the team as part of our robust internship for a year! Ideal candidates should be Boston-based, multitaskers, have excellent […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
We launched our quarterly newsletter on Earth Day 2017! Subscribe to our quarterly newsletter by clicking the subscribe button or CLICK HERE If you have comments, suggestions, or would like to […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On March 25, 2017, The Sumaira Foundation for NMO hosted its 2nd Annual NMO Awareness Gala at the Mandarin Oriental, Boston. 3 REASONS YOU MADE IT A ROARING SUCCESS 2X Awareness: […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Join us for an evening of fashion, champagne, music, and good company all in the name of charity. 20% of sales will be donated with hopes of finding a cure […]
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