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Tag: lupus

Savannah’s NMO Story – I’m Done Apologizing for Not Showing Up

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered […]

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Paula’s NMO Story – A Walking Miracle

Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO

  Paula is a walking miracle. She looks good, feels good and can do most everything she ever did in her life, though she is now eligible for senior discounts. Paula has NMO. Lupus. Hashimoto’s Disease. Sjogren’s Syndrome. Raynaud’s Syndrome. Postural Orthostatic Tachycardia Syndrome (POTS). Fibromyalgia. When she was just 15, Paula was diagnosed with Idiopathic thrombocytopenic […]

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Jeanette’s NMO Story – Surviving Since Birth

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]

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