Posted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel ill. I was throwing up uncontrollably. It started with just a few times a day, and suddenly I was throwing up or dry heaving 12 […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, wisdom, and incredible strength. Be inspired with the video below! Megan’s story marks our 20th Voices of NMO story and the 1st video submission. To […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and arms burned, but strangely, had not changed color. The burning sensation lasted for months. Lillian was in severe pain, and felt as if her body […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was diagnosed with NMO on March 10, 2015… An MRI that was done while I was receiving inpatient care for sudden paralysis of my lower limbs showed a spinal lesion on vertebrae C4 through C6… After all the unanswered questions, frustration, doctors appointments, blood work, imaging, crying, and terrifying Google searches, I finally had […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Something Wasn’t Right I was the perfect example of the shiny student off to bigger and better things from the small country town where I grew up. I had a very bright future ahead of me. It was my last year of high school, and I was cramming in as many courses into my workload […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location to location so that I can get there faster. I was a runner in high school, in college and I have completed 4 marathons, qualifying […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My life changed eleven years ago when I was diagnosed with NMO. To this day, I still have moments where I reflect back on my story and feel every ounce of emotion I felt during my diagnosis. However, over time, I have been able to adapt to my so-called normalcy after being an active teenager […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
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