TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune, miastenia grave, MOGAD e NMOSD, i loro caregiver e i medici interessati a queste patologie a […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
TSF France, en partenariat avec le MIRCEM, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! L'évènement, complétement gratuit, aura lieu au Mama Shelter de Lyon, rue Domer, les 29 et 30 novembre 2025. Nous sommes ravis d'être accompagnés par les experts […]
The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD, seronegative NMOSD, and MOGAD in Canada. We will be joined by Dr. Alexandra Muccilli from the University of Toronto, […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles. Join us on December 16th at 7 PM EST for a special webinar […]
En compañía de una psicóloga, una neurologa (ambas embajadores de TSF) y un psiquiatra, trataremos temas enfocados en salud mental. Una parte muy importante pero a veces ignorada por pacientes y cuidadores, del tratamiento integral que necesitan los pacientes de enfermedades neuroinmunes raras.
Siz veya sevdiğiniz biri MOG antikor hastalığından etkileniyor mu? 23 Aralık Salı günü saat 16:00'da MOGAD'a özel bir web seminerine katılmanızı rica ediyoruz. Prof. Dr. Murat Kürtüncü, Prof. Dr. Murat […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
Los cuidadores de pacientes con enfermedades neuroinmunes como NMOSD, MOGAD, etc.. también necesitan un espacio para expresar sus sentimientos y emociones. Este espacio es para los cuidadores y será dirigido […]
