The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Webcast Information Join the webcastExternal Link Disclaimer to watch the livestream on February 27 beginning at 9 a.m. (ET). Summary FDA will host Rare Disease Day, a virtual public meeting, on February 27, 2023, 9:00 am – 4:45 pm ET, in global observance of Rare Disease Week. This year’s theme is “Intersections with Rare Diseases – A […]
Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.
Rare Disease Day®(link is external) takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and […]
The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, […]
MEET YOUR EXPERTS – Triff deine Experten! Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch Wann: 28. Februar 2023 Durchgängig zwischen 10 und 18 Uhr Wie: Einfach vorbeischauen! Online (via Zoom) ohne Anmeldung über folgenden Link: https://bit.ly/meet-NEMOS-experts @Was? Mit Expertinnen und Experten ins Gespräch kommen, Fragen stellen, Gelegenheit zum offenen Austausch, Info-Schnipsel […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our global support group meeting in 2023! These meetings are a safe space led by the […]
Rejoignez-nous le mardi 14 mars pour le prochain webinaire "From the Experts" de TSF en français avec Dr. Kumaran DEIVA, neuro-pédiatre à Paris, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. Les participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire […]
You're invited to join TSF's next book club meeting on March 14th , during which we'll discuss "Shifting Into High Gear" by Kyle Bryant. Shifting Into High Gear charts the course of Kyle Bryant's transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich's ataxia, a life-shortening and disabling disease. […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
