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Spanish Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital […]
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I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
While 2018 came ringing in with optimism, I was back in school getting my business degree and making moves to start a daycare center for children with special needs. I was working long hours with a successful home daycare that allowed me to be an active parent with my children at home. I had a […]
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Paula is a walking miracle. She looks good, feels good and can do most everything she ever did in her life, though she is now eligible for senior discounts. Paula has NMO. Lupus. Hashimoto’s Disease. Sjogren’s Syndrome. Raynaud’s Syndrome. Postural Orthostatic Tachycardia Syndrome (POTS). Fibromyalgia. When she was just 15, Paula was diagnosed with Idiopathic thrombocytopenic […]
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Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
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My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]
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My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year of pursuing an MBA (Masters of Business Administration) at Pioneer Institute of Professional Studies (PIPS) in Indore when it all happened. In August 2010, I […]
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I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
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