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Posted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation (TSF) is pleased to announce Genevieve Richards as Community Development Manager, a strategic leadership role focused on strengthening and scaling the organization’s global Ambassador network. Genevieve received […]
Read MorePosted by: The Sumaira Foundation in Autoimmune Encephalitis (AE), Patient, Voices of NMO
In 2023, I was preparing to go to Washington, DC for Rare Disease Week as a Young Adult Rare Representative (YARR) with the EveryLife Foundation for Rare Diseases. I had […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation is pleased to welcome Dr. José Avila Ornelas, Adjunct Professor of Neurology at the University of Puerto Rico to join TSF’s international Medical Advisory Board as the […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
El sábado 24 de enero de 2026, TSF organizó un Día del Paciente en Puerto Rico para personas con trastornos neuroinflamatorios raros, en colaboración con el Centro de Esclerosis Múltiple […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Nací en Armenia, una ciudad muy pequeña en Colombia. A los 16 años me fuí a Bogotá, la capital, a estudiar estadística en la universidad. Luego me fui a Holanda […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Il 22 novembre 2025, TSF Italia ha organizzato a Roma la sua terza Giornata del Paziente dedicata alle malattie neuroimmunologiche rare. Un evento emozionante e interattivo che ha riunito 68 […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Les 29 et 30 novembre nous avons rassemblé une brochette d’experts et des Patients et Aidants de tous âges pour échanger et informer sur ces deux maladies, pour faire la […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Hola mi nombre es Anayansi, soy de Panamá y esta es, Mi historia, contada desde mi experiencia. Mi historia de salud empezó muy joven. A los 16 años me diagnosticaron […]
Read MorePosted by: The Sumaira Foundation in CNS Vasculitis, Patient, Voices of NMO
My name is Vanessa, I’m living with CNS vasculitis—and thriving. It’s been a journey marked by uncertainty, grit, and an incredible team of specialists who’ve helped me navigate this rare […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOGAD, Voices of NMO
Questa è la prima volta che racconto pubblicamente la nostra storia. Finora è rimasta in poche parole sussurrate. Ma oggi, dopo più di un anno, sento che è arrivato il […]
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