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Posted by: The Sumaira Foundation in News & Announcements
Agosto, 18 2025 – The Sumaira Foundation (TSF) le da la bienvenida a Johanna Cardona a nuestro equipo como Coordinadora de embajadores Latino América. Para Agosto de 2025, la fundación […]
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August 11, 2025 – The Sumaira Foundation (TSF) is pleased to welcome Randi Griffin to our team as a research associate. Randi brings 6+ years of clinical research experience in […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
September 2021 marked the perfect storm for NMO – a combination of a long-term infection and a viral illness. During the peak of the COVID lockdown on September 1, 2021, […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Mi nombre es Ángela Sánchez Berrio, y quiero compartir con ustedes la historia de mi hijo Tomás Morales Sánchez, con la esperanza de encontrar empatía, apoyo y, sobre todo, visibilizar […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My journey began in 2013 when I was 11 years old. I was experiencing severe symptoms of neuromyelitis optica spectrum disorder, but I wasn’t diagnosed for a number of years. […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On June 8th, 2025, TSF hosted a Patient Day for NMOSD & MOGAD in Washington DC in collaboration with Dr. Benjamin Osborne at the Georgetown University Conference Center (Thomas & […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Rashmi and I have been living with NMOSD since 2015. I’m sharing my story with all of its ups and downs, tears and smiles, but most importantly, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On June 9, 2025, Elena Damiani, TSF Ambassador for Italy, participated in the EUPATI Patient Academy meeting titled “The Role of Patients in Decision-Making Processes: Awareness, Training, Participation,” held in […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Bonjour, je m’appelle Natasha, j’ai 46 ans, et voici comment la NMOSD (neuromyélite optique) est entrée dans ma vie. Tout a commencé à l’été 2001. J’avais 23 ans et je […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Rita Ddungu Sembuya and I am from Kampala, Uganda. I am a patient living with neuromyelitis optica (NMO), and I was very pleased to receive an introduction […]
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