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The Sumaira Foundation
in Caregiver, NMO, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good […]
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The Sumaira Foundation
in NMO, Patient, Voices of NMO
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and […]
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The Sumaira Foundation
in News & Announcements
We launched our quarterly newsletter on Earth Day 2017! Subscribe to our quarterly newsletter by clicking the subscribe button or CLICK HERE If you have comments, suggestions, or would like to […]
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Posted by:
The Sumaira Foundation
in News & Announcements
On March 25, 2017, The Sumaira Foundation for NMO hosted its 2nd Annual NMO Awareness Gala at the Mandarin Oriental, Boston. 3 REASONS YOU MADE IT A ROARING SUCCESS 2X Awareness: […]
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Posted by:
The Sumaira Foundation
in MOG, Patient, Voices of NMO
On a warm February evening at the University of Miami, I sat in my Music Business lecture and wondered from where this strange soreness had come. There was a lingering […]
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The Sumaira Foundation
in NMO, Patient, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise […]
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Posted by:
The Sumaira Foundation
in Caregiver, NMO, Patient, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was […]
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Posted by:
The Sumaira Foundation
in News & Announcements
On March 5, 2016, The Sumaira Foundation hosted its 1st Annual NMO Awareness Gala at The Liberty Hotel Ballroom. We’re proud to declare this event as a huge success and share […]
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