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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
September 2021 marked the perfect storm for NMO – a combination of a long-term infection and a viral illness. During the peak of the COVID lockdown on September 1, 2021, […]
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My name is Rashmi and I have been living with NMOSD since 2015. I’m sharing my story with all of its ups and downs, tears and smiles, but most importantly, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Rita Ddungu Sembuya and I am from Kampala, Uganda. I am a patient living with neuromyelitis optica (NMO), and I was very pleased to receive an introduction […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My story with neuromyelitis optica spectrum disorder (NMOSD) began in 2021, although at the time, I had no idea what was happening to me. It started with something subtle yet […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nobody told me that retirement was going to be so challenging! I was ready to start enjoying the fruits of my labor, when the unexpected happened… As with all things […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I am Zoe and I am from Cyprus aka I am a Greek Cypriot. I had no health issues at all until 2020 when I was 50 years old… In […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On July 18, 2024, we were grateful and honored to celebrate 10 years of The Sumaira Foundation in Atlanta alongside physicians, community members, patients, supporters, and our TSF team. Our […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Je m’appelle Nelly, j’ai 44 ans et je vis dans un joli village dans l’Oise et j’ai la MOGAD. Sans le savoir cette maladie m’avait déjà fait un petit clin […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Ciao a tutti, mi presento, sono la mamma di Auri. Mi piace presentarmi così, perché questa è la sua storia, la storia di una bambina bella e forte che nel […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, March 9, 2024, we hosted our New England Patient Day for NMOSD & MOGAD in Boston in collaboration with Dr. Michael Levy and Dr. Marcelo Matiello of Massachusetts […]
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