TSF HCP Caregivers
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles. Join us on December 16th at 7 PM EST for a special webinar […]
En compañía de una psicóloga, una neurologa (ambas embajadores de TSF) y un psiquiatra, trataremos temas enfocados en salud mental. Una parte muy importante pero a veces ignorada por pacientes […]
Siz veya sevdiğiniz biri MOG antikor hastalığından etkileniyor mu? 23 Aralık Salı günü saat 16:00'da MOGAD'a özel bir web seminerine katılmanızı rica ediyoruz. Prof. Dr. Murat Kürtüncü, Prof. Dr. Murat Terzi ve Prof. Dr. Emine Rabia Koç, MOG antikor hastalığı, klinik çalışmalar ve hastaların gelecekteki tedavi seçenekleri için MOG ile ilgili klinik çalışmalara nasıl katılabilecekleri […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Los cuidadores de pacientes con enfermedades neuroinmunes como NMOSD, MOGAD, etc.. también necesitan un espacio para expresar sus sentimientos y emociones. Este espacio es para los cuidadores y será dirigido por Ingrid : Embajadora de TSF y paciente NMOSD y su esposo y cuidador Juan Pablo.
¡TSF llega a Puerto Rico el sábado 24 de enero 2026! Invitamos a pacientes, cuidadores, médicos, enfermeros, investigadores y defensores de los pacientes a unirse a nosotros en un día […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
Unisciti a noi il 27 gennaio per un webinar speciale dedicato alla terapia con cannabinoidi come opzione terapeutica valida e sicura per le malattie croniche. Sarà con noi Elisabetta Biavati, donna che convive con atassia cerebellare e sindrome di Arnold Chiari, in terapia con cannabis medica dal 2016. Elisabetta è un’attivista per i diritti delle […]
