Navigating Insurance Barriers as a Rare Disease Patient

Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles.

Join us on December 16th at 7 PM EST for a special webinar curated specifically for the rare disease community to equip you with clarity, practical steps, and confidence to better navigate insurance processes. Our guest speaker, Joe Touschner (Senior Policy Health Advisor, National Association of Insurance Commissioners), will help demystify key aspects of the health insurance system that often present barriers for rare disease patients and also answer questions from our live audience.

What you’ll learn:

• The basics of prior authorization
• How to navigate health insurance appeals
• How insurance rules vary by state and by plan type, and why state insurance department resources matter.
• Key tools and resources for patients

Who should attend:

• Individuals living with a rare disease and their caregivers
• Family members interested in advocacy
• Patient advocacy professionals, case managers, and support group leaders
• Healthcare professionals who support rare disease patients