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Posted by: The Sumaira Foundation in News & Announcements
On July 26th, 2025, TSF hosted a Patient Day in Chicago for Rare Neuroinflammatory Disorders in collaboration with the Chicago MS Alliance at Rush University Medical Center’s Searle Conference Center. Our in-person event hosted 90+ attendees including patients, caregivers, clinicians, advocates and industry representatives impacted by or involved in:
We were proud to partner with the Autoimmune Encephalitis Alliance, MG Holistic Society and The Stiff Person Syndrome Research Foundation. Clinician experts joined us from Northwestern Medicine, The University of Chicago, Rush University Medical Center and Methodist Hospitals.
Click here or the button below to view our photo gallery
meet our patient and care partner panelists
Aerial (NMOSD) | AnneMarie (NMOSD) | Chiquita (MG) | Courtney (MG) | Emmanuel (NMOSD) | Fiorella (AE) | Kina (NMOSD) | Lauren (MOGAD) | Marion (NMOSD) | Michelle (NMOSD) | Noah (MOGAD) | Stephanie (SPS) | Tanzenia (NMOSD) | Tara (SPS) | Tressa (NMOSD)
meet our clinician experts
Dr. Adil Javed (UChicago Medicine), Amy Perrin Ross, APN, MSN, CNRN, MSCN, Dr. Augusto Miravalle (Rush University Medical Center), Dr. Carolyn Goldschmidt (Endeavor Health), Dr. Madhu Soni (Rush University Medical Center), Dr. Shailee Shah (Ascension Medical Center), Dr. Shilpa Iyer (UChicago Medicine), Dr. Veronica Cipriani (UChicago Medicine) and Dr. William Conte (Methodist Hospitals)
special thanks
Meg Poe – Autoimmune Encephalitis Alliance
Michele Andwele – MG Holistic Society
Tara Zier – The Stiff Person Syndrome Research Foundation
Volunteers: Adelina Fassakhova, Leyla Herbst, Prannav Murukesh, Joann Ng, Mita Shah and Justin Zelenka
Vendors: Rush University Medical Center – Caitlin Yurko, KAOZ Entertainment (Staging), Andrew Zanoni (Photography), Ashland Addison (Floral) and LUFT Balloons
THIS EVENT WAS MADE POSSIBLE WITH SUPPORT FROM
Amgen (platinum sponsor), Alexion, UCB and Genentech.
