Choose Your Language:
The Sumaira Foundation (TSF) created a step-by-step resource to support and empower patients, families, and caregivers to navigate the insurance approval process with confidence, understand language commonly used by insurance companies, and know the steps often required to gain access to treatment.
Whether your NMOSD specialist has prescribed one of the four FDA-approved treatments (SOLIRIS®, ENSPRYNG®, UPLIZNA® and ULTOMIRIS®) or you are facing insurance delays or denials, this guide is here to walk you through what to expect and how to move forward.
On this page, you’ll find:
These resources are not meant to replace your doctor or care team’s advice. Instead, they are designed to provide you with the knowledge and tools to work through the insurance process alongside them.
Inside, you’ll find:
You do not have to read this entire guide at once. Start with the section that matches where you are in the process. Although this was guide created for NMOSD patients and caregiver, tips within this resource are applicable to all rare diseases with an FDA-approved treatment.
If your treatment plan is denied by your insurance, don’t worry, these templates can help. You’ll find templates for a Letter of Medical Necessity (from your provider) and a Personal Impact Statement (from you) that you and your care team can use to appeal the denial.
TSF partners with several nonprofit organizations that offer financial assistance and support services to NMOSD patients across the United States. Explore the programs below to find help with copays, transportation, lab tests, clinical trial participation, and more.
