Voices of NMO

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Tell Your Story

Amanda’s NMO Story – Physical Strength Gets You to the Start Line; Mental Strength Gets You to the Finish

Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried to do it a third time, I trained right up to walking 50km in a day however, I was suddenly unable to sleep, to stay… Read More

Julia’s Story – Early Signs of a Rare Disease

Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories.  They all start similarly, with an acute attack, out of the blue, and always marking the start of an unexpected turn in health. My story is different…. Read More

Shantrice’s NMO Story – A Fear You Just Can’t Break

It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later,… Read More

Katy’s NMO Story – The Making of a Warrior

This is a story of how a warrior is made. I have been gifted with the job of being this warrior’s mother and I am proud to share her story. This is the story of a smart, beautiful, strong, athletic, healthy 12 year-old who suddenly was thrown into battle – a battle with fear, unknowns,… Read More

Maurita’s NMO Story – Working Hard & Working Through

She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her own…   In 2008, Maurita suffered a bad stomach virus, but she worked and studied through it.  Almost a year later, it happened again, virulently enough… Read More