Voices of NMO

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Tell Your Story

Leah’s NMO Story – Resilience Through Life’s Interruptions

Before I begin, I would like to thank you and tell you how much I appreciate you taking the time to read about my journey with neuromyelitis optica. Prior to embarking on this journey, I was a normal, healthy, active child. I enjoyed reading, swimming, skating, skateboarding, bicycling, playing tennis, and riding horses. I enjoyed… Read More

Greg’s NMO Story – Making the Choice to Thrive

According to all of his medical tests, Greg is negative for both multiple sclerosis (MS) and neuromyelitis optica (NMO).  Like many people misdiagnosed due to similar symptoms, Greg was considered an MS patient and treated for years by self-injecting the interferon, Rebif.  His symptoms were on-and-off numbness in his limbs… His relapses were successfully treated… Read More

Shiela’s NMO Story – Battling NMO in the Philippines

My name is Shiela Marie Rutaquio from Binangoan, Philippines. I am 27 years old and I was diagnosed with a rare autoimmune disease called neuromyelitis optica (NMO) also known as Devic’s Disease in August 2018. My immune system fights against itself which causes damage to my spinal cord and myelin sheath resulting in paralysis from… Read More

Dr. Farrah Mateen’s NMO Story – A Global Perspective on NMO

Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients… Read More

Christy’s NMO Story – Conquering Every Day with NMO

My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel ill. I was throwing up uncontrollably. It started with just a few times a day, and suddenly I was throwing up or dry heaving 12… Read More