Voices of NMO

Tell Your Story

Dominic’s NMO Story – Guided Through the NMO Storm

On December 25, 2018, we finally received answers and a diagnosis after Dominic became ill on November 19th with what we thought was a bug that was going around his school… He was taken to Children’s Hospital twice in one week because he wasn’t getting any better with his symptoms. A couple of days passed… Read More


Patty’s NMO Story – Is It MS or Could It Be Something Else?

I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital… Read More


Lisa’s MOG Story – Using Writing & Crafting to Cope With Chronic Disease

It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came… Read More


Savannah’s NMO Story – I’m Done Apologizing for Not Showing Up

I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered… Read More


Theresa’s NMO Story – Facing One Day at a Time…

Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely.  You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank goodness, your husband is in the car with you and takes over driving before you get into an accident. You assume something crazy happened and… Read More