Voices of NMO

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Tell Your Story

Marie’s NMO Story – Stronger Than You’d Know

Nothing can fell Marie. No matter the punches that NMO throws, Marie just gets up again and keeps on going. A strong young woman who has learned to live with blindness and many years in a wheelchair, Marie, now 26, has been living with NMO since the age of 14. Like for so many young… Read More


Jamie’s NMO Story – Holding on, even if a little too tight…

Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35.  Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a second child. After the birth, though, she was put on Rituximab for the lymphoma, once a week for four weeks. Two years later, one night… Read More


Maureen’s NMO Story – NMO & My Life

This disease began with hiccups and vomiting 25+ times a day. I was certain that I had gotten food poisoning or had the flu. Later, I learned that things would get much worse before they got better.  I could no longer work because it was difficult for me to even get out of bed. After… Read More


Avery’s NMO Story – Racing Against NMO

My entire life, I was always a healthy and energetic person… I have played tons of sports and never went to the doctor unless it was for a sports physical. I found joy in all of life’s beauties but I really fell in love with running. I joined as a sophomore and not only did I… Read More


Sumaira’s NMO Story (from The Transverse Myelitis Association Blog – In Their Own Words”)

Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation for NMO and Miss Bangladesh-USA 2015. Thank you for taking the time to read my story. It all started in June 2014. I was a perfectly… Read More