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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260723T021136Z
CREATED:20260723T021136Z
LAST-MODIFIED:20260723T021136Z
UID:10000481-1792087200-1792090800@www.sumairafoundation.org
SUMMARY:Comprendiendo el anticuerpo AQP4 en NMOSD
DESCRIPTION:¿Usted o un ser querido vive con NMOSD? \nLo invitamos a acompañarnos en un webinar especial titulado **”Comprendiendo el anticuerpo AQP4 en NMOSD”**\, con la Dra. Pilar Perachino\, de Argentina. \nEn esta sesión\, la Dra. Perachino explicará qué es el anticuerpo AQP4\, cuál es su papel en el NMOSD\, cómo contribuye al diagnóstico de la enfermedad y por qué es tan importante para comprender su evolución y tratamiento. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas a la Dra. Perachino en tiempo real. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/comprendiendo-el-anticuerpo-aqp4-en-nmosd/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Pilar-Perachino.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261011T120000
DTEND;TZID=America/New_York:20261011T130000
DTSTAMP:20260522T091637Z
CREATED:20260522T091637Z
LAST-MODIFIED:20260522T091637Z
UID:10000466-1791720000-1791723600@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Family Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-family-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260930T120000
DTEND;TZID=Africa/Johannesburg:20260930T130000
DTSTAMP:20260915T125016Z
CREATED:20260915T125016Z
LAST-MODIFIED:20260915T125016Z
UID:10000500-1790769600-1790773200@www.sumairafoundation.org
SUMMARY:TSF's Human Collection Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 202\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collection-project-africa/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/07/HCP-Master-169-Facebook-Cover.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260928T200000
DTEND;TZID=America/New_York:20260928T210000
DTSTAMP:20260902T162215Z
CREATED:20260902T162215Z
LAST-MODIFIED:20260902T162215Z
UID:10000496-1790625600-1790629200@www.sumairafoundation.org
SUMMARY:HCP Presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays-5/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260913T120000
DTEND;TZID=America/New_York:20260913T130000
DTSTAMP:20260522T091238Z
CREATED:20260522T091238Z
LAST-MODIFIED:20260522T091238Z
UID:10000465-1789300800-1789304400@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Rewards of Caregiving
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-rewards-of-caregiving/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260909T130000
DTEND;TZID=Africa/Johannesburg:20260909T140000
DTSTAMP:20260908T072810Z
CREATED:20260825T122659Z
LAST-MODIFIED:20260908T072810Z
UID:10000489-1788958800-1788962400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-africa/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/07/HCP-Master-169-Facebook-Cover.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260831T200000
DTEND;TZID=America/New_York:20260831T210000
DTSTAMP:20260827T131839Z
CREATED:20260827T131839Z
LAST-MODIFIED:20260827T131839Z
UID:10000493-1788206400-1788210000@www.sumairafoundation.org
SUMMARY:HCP Presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays-4/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260816T120000
DTEND;TZID=America/New_York:20260816T130000
DTSTAMP:20260522T090835Z
CREATED:20260522T090835Z
LAST-MODIFIED:20260522T090835Z
UID:10000464-1786881600-1786885200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Music Can Improve Quality of Life
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-music-can-improve-quality-of-life/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260805T173000
DTEND;TZID=America/New_York:20260805T183000
DTSTAMP:20260720T220140Z
CREATED:20260713T220550Z
LAST-MODIFIED:20260720T220140Z
UID:10000476-1785951000-1785954600@www.sumairafoundation.org
SUMMARY:MOGAD in LatAm
DESCRIPTION:¿Usted o un ser querido vive con MOGAD? \nLo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti\, del Hospital Alemán de Argentina\, quien compartirá las últimas novedades sobre el tratamiento del MOGAD. \nEl Dr. Contentti explicará cómo los resultados de un nuevo ensayo clínico podrían ayudar a los pacientes y sus familias a comprender mejor las futuras opciones terapéuticas para el MOGAD en América Latina. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas al Dr. Contentti en tiempo real. \nEl webinar será moderado por Ernesto\, paciente con MOGAD y Embajador de TSF en México. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/mogad-en-latam/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Edgar-Carnero-Contentti-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260729T120000
DTEND;TZID=Africa/Johannesburg:20260729T130000
DTSTAMP:20260721T111219Z
CREATED:20260721T111219Z
LAST-MODIFIED:20260721T111219Z
UID:10000480-1785326400-1785330000@www.sumairafoundation.org
SUMMARY:Human Collective Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by rare neuroimmune diseases. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-5/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/07/HCP-Master-169-Facebook-Cover.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260712T120000
DTEND;TZID=America/New_York:20260712T130000
DTSTAMP:20260522T090337Z
CREATED:20260522T090337Z
LAST-MODIFIED:20260522T090337Z
UID:10000463-1783857600-1783861200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Fitting in Fitness
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-fitting-in-fitness/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T200000
DTEND;TZID=America/New_York:20260625T210000
DTSTAMP:20260610T145856Z
CREATED:20260508T200046Z
LAST-MODIFIED:20260610T145856Z
UID:10000459-1782417600-1782421200@www.sumairafoundation.org
SUMMARY:Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment
DESCRIPTION:Understanding insurance coverage can be overwhelming\, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday\, June 25 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. \nIn this webinar\, Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment\, Dr. Walch will explain what step therapy is\, why it exists\, and how it can affect treatment timelines\, medication access\, and patient outcomes. Attendees will also learn practical strategies for navigating insurance barriers\, advocating for appropriate care\, and working with their healthcare teams throughout the process. \nThose who attend live will have the opportunity to ask questions during the session. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-step-therapy-how-insurance-decisions-shape-neuroimmune-treatment/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Rosemarie-Walch-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T170000
DTEND;TZID=America/New_York:20260617T180000
DTSTAMP:20260430T155142Z
CREATED:20260430T020951Z
LAST-MODIFIED:20260430T155142Z
UID:10000445-1781715600-1781719200@www.sumairafoundation.org
SUMMARY:CAR-T: What Does This Mean for Rare Neuroimmune Disorders?
DESCRIPTION:You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? \nJoin us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus\, experts from Massachusetts General Hospital/Harvard Medical School\, who will break down this complex treatment approach in a way that’s easy to understand. During this time\, our expert speakers will educate our live audience about what CAR-T is\, how it works and why researchers are hopeful about its potential in conditions like NMOSD\, MOGAD\, and beyond. \nWhether you’re newly diagnosed\, living with a condition\, or supporting a loved one\, this session is designed to empower you with knowledge\, clarity and hope for the future of this breakthrough treatment. \n\nAttendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program was made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/webinar-car-t-what-does-this-mean-for-rare-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Michael-Levy-Marcela-Maus.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260614T180000
DTEND;TZID=Africa/Johannesburg:20260614T190000
DTSTAMP:20260522T085321Z
CREATED:20260522T085321Z
LAST-MODIFIED:20260522T085321Z
UID:10000462-1781460000-1781463600@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Diffusing Family Conflict
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-diffusing-family-conflict/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20260603T120000
DTEND;TZID=Africa/Johannesburg:20260603T130000
DTSTAMP:20260530T064201Z
CREATED:20260530T064201Z
LAST-MODIFIED:20260530T064201Z
UID:10000470-1780488000-1780491600@www.sumairafoundation.org
SUMMARY:The Human Collective Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by rare neuroimmune diseases. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD patients felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 202\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/the-human-collective-project-africa/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP-Master-169-Facebook-Cover-1-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T210000
DTEND;TZID=America/New_York:20260528T220000
DTSTAMP:20260506T171641Z
CREATED:20260504T220909Z
LAST-MODIFIED:20260506T171641Z
UID:10000458-1780002000-1780005600@www.sumairafoundation.org
SUMMARY:When to Call Your Neurologist & What to Say: Advice from a Neurologist
DESCRIPTION:Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. \nJoin us on Thursday\, May 28 at 6 PM PT / 9 PM ET for a practical\, patient-friendly webinar with Dr. Stacey Clardy\, a leading neurologist\, who will walk through when it’s important to contact your care team\, how to clearly communicate your symptoms\, and how to advocate for the care you deserve. \nWhether you’re newly diagnosed or have been managing your condition for years\, this session will offer guidance to help you feel more confident navigating conversations with your neurologist. \nThose who attend live will have the opportunity to ask questions. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/when-to-call-your-neurologist-what-to-say-advice-from-a-neurologist/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Stacey-Clardy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T153000
DTEND;TZID=America/New_York:20260518T163000
DTSTAMP:20260424T195529Z
CREATED:20260424T195529Z
LAST-MODIFIED:20260424T195529Z
UID:10000442-1779118200-1779121800@www.sumairafoundation.org
SUMMARY:Managing Chronic Pain
DESCRIPTION:Living with chronic pain can feel overwhelming\, but you don’t have to face it alone. You’re invited to a webinar focused on navigating chronic pain with clarity\, support\, and hope. \nOn Monday\, May 18th at 3:30 PM EST\, we’ll be joined by Dr. Anastasia Vishnevetsky\, neuroimmunologist at Mass General Brigham/Harvard Medical School\, who will share practical strategies and insights to help individuals better understand and manage chronic pain in their daily lives. This session is designed with patients and caregivers in mind—offering approachable\, real-world guidance in a supportive and inclusive space. \nTogether\, we’ll explore ways to improve quality of life\, build resilience\, and feel more empowered in your care journey. Attendees who join live will have the opportunity to ask questions and engage directly during the session. \nWe hope you’ll join us for this meaningful conversation and take a step toward feeling more supported and informed. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-chronic-pain/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Anastasia-Vishnevetsky.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260510T120000
DTEND;TZID=America/New_York:20260510T130000
DTSTAMP:20260430T134338Z
CREATED:20260430T134338Z
LAST-MODIFIED:20260430T134338Z
UID:10000446-1778414400-1778418000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregiver's - Dealing with Depression
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-dealing-with-depression/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260412T110000
DTEND;TZID=America/New_York:20260412T120000
DTSTAMP:20260201T164501Z
CREATED:20260201T164201Z
LAST-MODIFIED:20260201T164501Z
UID:10000434-1775991600-1775995200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Coping with Caregiving Emotions
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-coping-with-caregiving-emotions/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T110000
DTEND;TZID=America/New_York:20260315T120000
DTSTAMP:20260201T165057Z
CREATED:20260201T163548Z
LAST-MODIFIED:20260201T165057Z
UID:10000433-1773572400-1773576000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Caregiver Burnout
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-caregiver-burnout/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260208T110000
DTEND;TZID=America/New_York:20260208T120000
DTSTAMP:20260128T114217Z
CREATED:20260128T114217Z
LAST-MODIFIED:20260128T114217Z
UID:10000430-1770548400-1770552000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Communication is Key
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-communication-is-key/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T200000
DTEND;TZID=America/New_York:20260115T210000
DTSTAMP:20260112T151849Z
CREATED:20260112T151551Z
LAST-MODIFIED:20260112T151849Z
UID:10000334-1768507200-1768510800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-48/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/580539276_814407297887099_8833406591562928552_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260111T110000
DTEND;TZID=America/New_York:20260111T120000
DTSTAMP:20260107T192746Z
CREATED:20260103T205601Z
LAST-MODIFIED:20260107T192746Z
UID:10000331-1768129200-1768132800@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers: Becoming a Resilient Caregiver
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-becoming-a-resilient-caregiver/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251214T110000
DTEND;TZID=America/New_York:20251214T120000
DTSTAMP:20251204T203122Z
CREATED:20251204T203122Z
LAST-MODIFIED:20251204T203122Z
UID:10000327-1765710000-1765713600@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/12/HCP-Caregiver-Visual.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251116T110000
DTEND;TZID=America/New_York:20251116T120000
DTSTAMP:20251008T155726Z
CREATED:20251008T155726Z
LAST-MODIFIED:20251008T155726Z
UID:10000316-1763290800-1763294400@www.sumairafoundation.org
SUMMARY:Human Collective Project | Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/human-collective-project-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/Caregiver-Visual-FB.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20251110T180000
DTEND;TZID=Europe/Athens:20251110T190000
DTSTAMP:20251013T232703Z
CREATED:20251013T232500Z
LAST-MODIFIED:20251013T232703Z
UID:10000322-1762797600-1762801200@www.sumairafoundation.org
SUMMARY:Κατανόηση της MOGAD και της σημασίας της συμμετοχής των ασθενών σε κλινικές δοκιμές
DESCRIPTION:Εσείς ή κάποιος που αγαπάτε επηρεάζεστε από το MOGAD; \nΣας προσκαλούμε να συμμετάσχετε στο επερχόμενο πρόγραμμά μας αφιερωμένο στην MOGAD τη Δευτέρα 10 Νοεμβρίου στις 6 μ.μ. EET. \nΘα συμμετάσχουν ο Καθηγητής Νικόλας Γρηγοριάδης και η Δρ. Έλμα Ευαγγελοπούλου\, οι οποίοι θα συζητήσουν τα συμπτώματα\, τις θεραπείες και τις κλινικές δοκιμές της MOGAD. \nΟι συμμετέχοντες που θα συμμετάσχουν ζωντανά θα έχουν την ευκαιρία να θέσουν ερωτήσεις στους ειδικούς. Αυτό το διαδικτυακό σεμινάριο θα ηχογραφηθεί και θα είναι διαθέσιμο στο κανάλι YouTube του TSF. \nΑυτό το πρόγραμμα καθίσταται δυνατό με την υποστήριξη του UCB.
URL:https://www.sumairafoundation.org/event/%ce%ba%ce%b1%cf%84%ce%b1%ce%bd%cf%8c%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-mogad-%ce%ba%ce%b1%ce%b9-%cf%84%ce%b7%cf%82-%cf%83%ce%b7%ce%bc%ce%b1%cf%83%ce%af%ce%b1%cf%82-%cf%84%ce%b7%cf%82-%cf%83%cf%85/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/GREEK.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kuwait:20250909T190000
DTEND;TZID=Asia/Kuwait:20250909T200000
DTSTAMP:20250813T170324Z
CREATED:20250813T170324Z
LAST-MODIFIED:20250813T170324Z
UID:10000306-1757444400-1757448000@www.sumairafoundation.org
SUMMARY:إدارة الأعراض والأمراض المصاحبة مع اضطراب الطيف العصبي البصري
DESCRIPTION:سيناقش هذا الويبينار أحدث الطرق والرؤى حول إدارة الأعراض الأساسية والاعتلالات المصاحبة لاضطراب الطيف العصبي البصري .(NMOSD) \nسيركز المختصون المشاركون على التحديات التي يواجهها المرضى في التعامل مع المرض، وأفضل الممارسات لتحسين جودة الحياة، واستراتيجيات علاجية للتعامل مع الأمراض المصاحبة. سيحظى الحضور أيضًا بفرصة لطرح الأسئلة والنقاش مع الخبراء في هذا المجال
URL:https://www.sumairafoundation.org/event/%d8%a5%d8%af%d8%a7%d8%b1%d8%a9-%d8%a7%d9%84%d8%a3%d8%b9%d8%b1%d8%a7%d8%b6-%d9%88%d8%a7%d9%84%d8%a3%d9%85%d8%b1%d8%a7%d8%b6-%d8%a7%d9%84%d9%85%d8%b5%d8%a7%d8%ad%d8%a8%d8%a9-%d9%85%d8%b9-%d8%a7%d8%b6/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seraj-Makkawi-Salman-Aljarallah.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20250811T150509Z
CREATED:20250717T145545Z
LAST-MODIFIED:20250811T150509Z
UID:10000294-1757016000-1757019600@www.sumairafoundation.org
SUMMARY:Understanding MOGAD & The Importance of Patient Participation in Clinical Trials
DESCRIPTION:Have you or someone close to you been affected by MOGAD? Join us on Thursday\, September 4th to learn about MOGAD and the importance of patient participation in clinical trials. This program will feature Dr. Saif Huda (The Walton Centre – UK)\, Dr. Silvia Messina (Nuffield Department of Clinical Neurosciences – UK) and Dr. Katharina Fink (Karolinska University Hospital and Karolinska Institutet – Sweden) who will answer questions from our audience in real time. This program is promoted by the Sumaira Foundation in collaboration with mymyelitis and is made possible with support from UCB.
URL:https://www.sumairafoundation.org/event/understanding-mogad-the-importance-of-patient-participation-in-clinical-trials/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/ENGLISHUKSWEDEN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20250203T180000
DTEND;TZID=America/Bogota:20250203T190000
DTSTAMP:20250116T190007Z
CREATED:20250116T190007Z
LAST-MODIFIED:20250116T190007Z
UID:10000256-1738605600-1738609200@www.sumairafoundation.org
SUMMARY:Tratamientos para MOGAD
DESCRIPTION:Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina. \n  \nPara registrarse\, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A \n  \nLos asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en el canal de YouTube de TSF. \n  \nEste programa es posible gracias al apoyo de Amgen.
URL:https://www.sumairafoundation.org/event/tratamientos-para-mogad/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/01/Contentti-and-Navas.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250131T110000
DTEND;TZID=America/New_York:20250131T120000
DTSTAMP:20250127T161446Z
CREATED:20241211T165158Z
LAST-MODIFIED:20250127T161446Z
UID:10000253-1738321200-1738324800@www.sumairafoundation.org
SUMMARY:Managing Incontinence with Neuroimmune Disorders
DESCRIPTION:Join us on December 20th for TSF’s final webinar of 2024: Managing Incontinence with Neuroimmune Disorders featuring Dr. Raveen Syan\, Urologist and Assistant Professor of Clinical Urology at The University of Miami. \nDr. Syan will discuss urinary\, bowel and sexual dysfunction in the setting of neuroimmune conditions. Attendees joining the live program will have the opportunity to ask Dr. Raveen questions in real time. This webinar will be recorded and available for replay on TSF’s YouTube channel. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-incontinence-with-neuroimmune-disorders/
LOCATION:Virtual: Global
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/12/Raveen-Syan-1.png
END:VEVENT
END:VCALENDAR