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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20230106T090000
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DTSTAMP:20260614T230146
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UID:12206-1672995600-1672999200@www.sumairafoundation.org
SUMMARY:Understanding Clinical Trials for MOGAD & the Importance of Patient Participation
DESCRIPTION:You’re invited to join TSF’s 1st live webinar of 2023 – Understanding Clinical Trials for MOGAD & the Importance of Patient Participation – on Friday\, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally\, we will discuss the importance and value of patient participation in clinical research and trials for novel therapies. Attendees will have the opportunity to ask Dr. Levy questions in real time. \nThis webinar will be recorded and available for replay on TSF’s Facebook and YouTube libraries. \nThis webinar is sponsored by UCB.
URL:https://www.sumairafoundation.org/event/understanding-clinical-trials-for-mogad-the-importance-of-patient-participation/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2022/12/320019904_674636397736521_7721156511967542261_n.jpg
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DTSTART;TZID=Europe/Brussels:20230126T170000
DTEND;TZID=Europe/Brussels:20230126T180000
DTSTAMP:20260614T230146
CREATED:20230109T005119Z
LAST-MODIFIED:20230109T005119Z
UID:12320-1674752400-1674756000@www.sumairafoundation.org
SUMMARY:Young People’s Webinar | Connecting MS\, NMOSD & MOGAD: Sharing Knowledge and Experiences to Strengthen Our Communities
DESCRIPTION:There are a number of different autoimmune disorders with similar features to Multiple Sclerosis (MS)\, such as neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD). \nThese diseases share striking similarities that ultimately affect the way in which our communities understand and manage the diagnosis. Hence\, it is of utmost importance for young people with MS to learn more about them as well as connect with the communities as they share similar experiences and questions for the future. \nThe webinar will focus on:\n– Sharing Knowledge\, where Dr. Sara Mariotto‬ will introduce NMOSD & MOGAD as well as describe the similarities and differences between MS\, NMOSD & MOGAD from an expert perspective.\n– Sharing Experiences\, where Sumaira Ahmed will share her own NMOSD story and how she built communities of support for patients and their caregivers by developing the Sumaira Foundation.
URL:https://www.sumairafoundation.org/event/young-peoples-webinar-connecting-ms-nmosd-mogad-sharing-knowledge-and-experiences-to-strengthen-our-communities/
LOCATION:Virtual: Danmark\, Denmark
CATEGORIES:Partner Events
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2023/01/322736761_852812212465443_6239819172966124272_n.jpg
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