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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260805T173000
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UID:22910-1785951000-1785954600@www.sumairafoundation.org
SUMMARY:MOGAD in LatAm
DESCRIPTION:¿Usted o un ser querido vive con MOGAD? \nLo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti\, del Hospital Alemán de Argentina\, quien compartirá las últimas novedades sobre el tratamiento del MOGAD. \nEl Dr. Contentti explicará cómo los resultados de un nuevo ensayo clínico podrían ayudar a los pacientes y sus familias a comprender mejor las futuras opciones terapéuticas para el MOGAD en América Latina. \nAdemás\, quienes se conecten en vivo tendrán la oportunidad de hacer sus preguntas al Dr. Contentti en tiempo real. \nEl webinar será moderado por Ernesto\, paciente con MOGAD y Embajador de TSF en México. \n¡Esperamos contar con su participación en esta conversación informativa e interactiva!
URL:https://www.sumairafoundation.org/event/mogad-en-latam/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/07/Edgar-Carnero-Contentti-1.png
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DTSTART;TZID=America/New_York:20260813T200000
DTEND;TZID=America/New_York:20260813T210000
DTSTAMP:20260502T154047Z
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UID:21953-1786651200-1786654800@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-53/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP_America.png
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DTSTART;TZID=America/New_York:20260816T120000
DTEND;TZID=America/New_York:20260816T130000
DTSTAMP:20260522T090835Z
CREATED:20260522T090835Z
LAST-MODIFIED:20260522T090835Z
UID:22148-1786881600-1786885200@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Music Can Improve Quality of Life
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-music-can-improve-quality-of-life/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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DTSTART;TZID=America/New_York:20260831T200000
DTEND;TZID=America/New_York:20260831T210000
DTSTAMP:20260827T131839Z
CREATED:20260827T131839Z
LAST-MODIFIED:20260827T131839Z
UID:23430-1788206400-1788210000@www.sumairafoundation.org
SUMMARY:HCP Presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays-4/
LOCATION:Virtual: Global
CATEGORIES:Support Group
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