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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260510T120000
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UID:21888-1778414400-1778418000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregiver's - Dealing with Depression
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-dealing-with-depression/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/04/HCP-Caregiver-Visual-.png
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DTSTART;TZID=America/New_York:20260514T200000
DTEND;TZID=America/New_York:20260514T210000
DTSTAMP:20260622T115603
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UID:21945-1778788800-1778792400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-49/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/HCP_America.png
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DTSTART;TZID=America/New_York:20260518T153000
DTEND;TZID=America/New_York:20260518T163000
DTSTAMP:20260622T115603
CREATED:20260424T195529Z
LAST-MODIFIED:20260424T195529Z
UID:21794-1779118200-1779121800@www.sumairafoundation.org
SUMMARY:Managing Chronic Pain
DESCRIPTION:Living with chronic pain can feel overwhelming\, but you don’t have to face it alone. You’re invited to a webinar focused on navigating chronic pain with clarity\, support\, and hope. \nOn Monday\, May 18th at 3:30 PM EST\, we’ll be joined by Dr. Anastasia Vishnevetsky\, neuroimmunologist at Mass General Brigham/Harvard Medical School\, who will share practical strategies and insights to help individuals better understand and manage chronic pain in their daily lives. This session is designed with patients and caregivers in mind—offering approachable\, real-world guidance in a supportive and inclusive space. \nTogether\, we’ll explore ways to improve quality of life\, build resilience\, and feel more empowered in your care journey. Attendees who join live will have the opportunity to ask questions and engage directly during the session. \nWe hope you’ll join us for this meaningful conversation and take a step toward feeling more supported and informed. \nThis program is made possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/managing-chronic-pain/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/04/Anastasia-Vishnevetsky.jpg
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DTSTART;TZID=America/New_York:20260525T200000
DTEND;TZID=America/New_York:20260525T210000
DTSTAMP:20260622T115603
CREATED:20260502T162330Z
LAST-MODIFIED:20260502T162330Z
UID:21964-1779739200-1779742800@www.sumairafoundation.org
SUMMARY:HCP presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Mental-Health-Monday-.png
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DTSTART;TZID=America/New_York:20260528T210000
DTEND;TZID=America/New_York:20260528T220000
DTSTAMP:20260622T115603
CREATED:20260504T220909Z
LAST-MODIFIED:20260506T171641Z
UID:21974-1780002000-1780005600@www.sumairafoundation.org
SUMMARY:When to Call Your Neurologist & What to Say: Advice from a Neurologist
DESCRIPTION:Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. \nJoin us on Thursday\, May 28 at 6 PM PT / 9 PM ET for a practical\, patient-friendly webinar with Dr. Stacey Clardy\, a leading neurologist\, who will walk through when it’s important to contact your care team\, how to clearly communicate your symptoms\, and how to advocate for the care you deserve. \nWhether you’re newly diagnosed or have been managing your condition for years\, this session will offer guidance to help you feel more confident navigating conversations with your neurologist. \nThose who attend live will have the opportunity to ask questions. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/when-to-call-your-neurologist-what-to-say-advice-from-a-neurologist/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Stacey-Clardy.png
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