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X-WR-CALNAME:The Sumaira Foundation
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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20260208T110000
DTEND;TZID=America/New_York:20260208T120000
DTSTAMP:20260510T111341
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UID:21161-1770548400-1770552000@www.sumairafoundation.org
SUMMARY:TSF HCP Caregivers - Communication is Key
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/tsf-hcp-caregivers-communication-is-key/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/HCP-Caregiver-Visual-.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260213T190000
DTEND;TZID=Europe/London:20260213T200000
DTSTAMP:20260510T111341
CREATED:20260128T111711Z
LAST-MODIFIED:20260128T111711Z
UID:21158-1771009200-1771012800@www.sumairafoundation.org
SUMMARY:Human Collective Project - UK
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/human-collective-project-uk/
LOCATION:Virtual: United Kingdom\, United Kingdom
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/UK-HCP-Visuals-169-Facebook-Cover-640-x-200-px.png
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DTSTART;TZID=America/Mexico_City:20260221T100000
DTEND;TZID=America/Mexico_City:20260221T110000
DTSTAMP:20260510T111341
CREATED:20260128T163248Z
LAST-MODIFIED:20260128T163248Z
UID:21169-1771668000-1771671600@www.sumairafoundation.org
SUMMARY:Generalidades de Encefalitis Autoinmune
DESCRIPTION:Con motivo del Día Mundial de la Encefalitis 2026\, nos complace contar con la participación de la Dra. Nicole Somerville Briones\, quien ofrecerá una visión general de la encefalitis autoinmune y abordará aspectos clave como el diagnóstico\, el manejo de los síntomas\, los tratamientos y más. Acompáñanos el 21 de febrero para una conversación dinámica. Quienes se conecten en directo podrán hacer preguntas a la Dra. Somerville en tiempo real. \nNicole Somerville Briones es médica cirujana de la Universidad Anáhuac (México) con Master en Neurociencias (MSc Brain and Mind Sciences) en el Queen Square Institute of Neurology\, parte de University College London\, en el Reino Unido. Participó en un proyecto de investigación sobre Encefalitis Autoinmune. \nPara registrarte\, visita: https://us02web.zoom.us/webinar/register/WN_xFgbNRGVTFitJ87rp1M6bQ
URL:https://www.sumairafoundation.org/event/generalidades-de-encefalitis-autoinmune/
LOCATION:Virtual: Mexico
CATEGORIES:From The Experts
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BEGIN:VEVENT
DTSTART;TZID=Pacific/Honolulu:20260221T110000
DTEND;TZID=Pacific/Honolulu:20260221T170000
DTSTAMP:20260510T111341
CREATED:20260107T153754Z
LAST-MODIFIED:20260128T150925Z
UID:21017-1771671600-1771693200@www.sumairafoundation.org
SUMMARY:TSF's Honolulu Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you or your loved one impacted by MG*\, MOGAD* or NMOSD*?\nTSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday\, February 21st in Honolulu! \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Natalia Gonzalez Caldito (Hawaii Neuroscience) and Dr. Alexandra Galati (The Queen’s Health Systems) and in partnership with the MG Holistic Society. Registration is free and lunch will be served. We can’t wait to see you in Honolulu! \n\n\n—\n\n\nMG stands for myasthenia gravisMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorderNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/tsfs-honolulu-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:hawaii convention center\, 1801 Kalākaua Ave\, Honolulu\, HI\, 96815\, United States
CATEGORIES:patient days,Patient Days,TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Hawaii-Patient-Day-February-2026-presentation.png
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BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20260224T190000
DTEND;TZID=America/Bogota:20260224T200000
DTSTAMP:20260510T111341
CREATED:20260202T231444Z
LAST-MODIFIED:20260202T231444Z
UID:21154-1771959600-1771963200@www.sumairafoundation.org
SUMMARY:HCP Grupo de apoyo Pacientes
DESCRIPTION:Un espacio en español para que pacientes de enfermedades neuroinmunes raras como NMOSD\, MOGAD\, etc expresen sus emociones.
URL:https://www.sumairafoundation.org/event/hcp-grupo-de-apoyo-pacientes/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Spanish.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260226T190000
DTEND;TZID=America/New_York:20260226T200000
DTSTAMP:20260510T111341
CREATED:20260128T190035Z
LAST-MODIFIED:20260128T190035Z
UID:21174-1772132400-1772136000@www.sumairafoundation.org
SUMMARY:Meet the Author | Jayne Mattingly\, "This is Body Grief"
DESCRIPTION:In honor of Rare Disease Day 2026\, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST. \nWe’re honored to welcome Jayne Mattingly\, author of “This is Body Grief”\, in conversation with Taylor Ann Macey\, NMOSD patient and TSF Ambassador. Their discussion will explore chronic illness\, advocacy and Jayne’s powerful book – an intimate\, lyrical reflection on living in a body shaped by illness\, grief\, resilience and care. \nA thoughtful\, honest conversation you won’t want to miss. Register here: https://us02web.zoom.us/webinar/register/WN_DJvY5tYkTK2TikJiGU2Kag \nTo order Jayne’s book\, visit https://www.amazon.com/This-Body-Grief-Making-Living/dp/0593656792
URL:https://www.sumairafoundation.org/event/meet-the-author-jayne-mattingly-this-is-body-grief/
CATEGORIES:Meet The Author
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/01/Meet-the-Author-Jayne-Mattingly-February-2026.png
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