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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T190000
DTEND;TZID=America/New_York:20251105T200000
DTSTAMP:20260531T094635
CREATED:20251013T225447Z
LAST-MODIFIED:20251013T225447Z
UID:20372-1762369200-1762372800@www.sumairafoundation.org
SUMMARY:Navigating NMOSD in Canada
DESCRIPTION:Calling Canadians impacted by NMOSD: you’re invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada. \nJoin us on Wednesday\, November 5th at 7 PM EST for a live presentation and discussion with Dr. Dalia Rotstein\, neurologist at The University of Toronto and a globally-recognized expert in NMOSD\, who will share insights on diagnosis\, treatment options\, access to care and strategies for managing life with NMOSD in the Canadian healthcare system. \nAttendees joining live will have the opportunity to ask Dr. Rotstein questions in real time. This webinar will be recorded and made available for replay on TSF’s YouTube channel. \nThis program is made possible with support from Alexion and Amgen.
URL:https://www.sumairafoundation.org/event/navigating-nmosd-in-canada/
LOCATION:Virtual: Canada\, Canada
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/Dalia-Rotstein.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T110000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260531T094635
CREATED:20250930T184424Z
LAST-MODIFIED:20251008T032147Z
UID:20250-1762599600-1762621200@www.sumairafoundation.org
SUMMARY:Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Toronto! \nAre you an AE*\, MG*\, MOGAD* or NMOSD* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate in Canada? You’re invited to our event on Saturday\, November 8th. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Dalia Rotstein at the University of Toronto\, Dr. Ann Yeh from SickKids and in partnership with Muscular Dystrophy Canada. \nRegistration is free and lunch will be served. We can’t wait to see you in Toronto! \nThe Sumaira Foundation team \n\n\n— \nAE stands for autoimmune encephalitis\nMG stands for myasthenia gravis\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nNMOSD stands for neuromyelitis optica spectrum disorder
URL:https://www.sumairafoundation.org/event/toronto-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:The Conference Centre at the OBA\, 20 Toronto Street Toronto\, ON\, M5C 2B8\, Canada
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Toronto-Patient-Day-1920x1080-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20251109T200000
DTEND;TZID=Asia/Kolkata:20251109T210000
DTSTAMP:20260531T094635
CREATED:20251031T152156Z
LAST-MODIFIED:20251031T152156Z
UID:20611-1762718400-1762722000@www.sumairafoundation.org
SUMMARY:Human Collective Project – India Online Meeting
DESCRIPTION:We warmly invite you to join our upcoming Human Collective Project (HCP) meeting for the Indian rare neuroimmune community\, taking place online via Zoom. Our special guest speaker\, Dr. Garima Yadav\, a respected physical therapist\, will share valuable insights on maintaining physical wellbeing while living with rare neuroimmune conditions\, followed by an engaging Question and Answer session. \nThe Human Collective Project\, led by TSF Ambassadors\, is a heartfelt initiative that brings together individuals and caregivers affected by rare neuroimmune conditions. It offers a safe and supportive space to connect\, share experiences\, and build a sense of community and understanding.
URL:https://www.sumairafoundation.org/event/human-collective-project-india-online-meeting/
LOCATION:Virtual: India\, India
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/INDIA-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20251110T180000
DTEND;TZID=Europe/Athens:20251110T190000
DTSTAMP:20260531T094635
CREATED:20251013T232500Z
LAST-MODIFIED:20251013T232703Z
UID:20377-1762797600-1762801200@www.sumairafoundation.org
SUMMARY:Κατανόηση της MOGAD και της σημασίας της συμμετοχής των ασθενών σε κλινικές δοκιμές
DESCRIPTION:Εσείς ή κάποιος που αγαπάτε επηρεάζεστε από το MOGAD; \nΣας προσκαλούμε να συμμετάσχετε στο επερχόμενο πρόγραμμά μας αφιερωμένο στην MOGAD τη Δευτέρα 10 Νοεμβρίου στις 6 μ.μ. EET. \nΘα συμμετάσχουν ο Καθηγητής Νικόλας Γρηγοριάδης και η Δρ. Έλμα Ευαγγελοπούλου\, οι οποίοι θα συζητήσουν τα συμπτώματα\, τις θεραπείες και τις κλινικές δοκιμές της MOGAD. \nΟι συμμετέχοντες που θα συμμετάσχουν ζωντανά θα έχουν την ευκαιρία να θέσουν ερωτήσεις στους ειδικούς. Αυτό το διαδικτυακό σεμινάριο θα ηχογραφηθεί και θα είναι διαθέσιμο στο κανάλι YouTube του TSF. \nΑυτό το πρόγραμμα καθίσταται δυνατό με την υποστήριξη του UCB.
URL:https://www.sumairafoundation.org/event/%ce%ba%ce%b1%cf%84%ce%b1%ce%bd%cf%8c%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-mogad-%ce%ba%ce%b1%ce%b9-%cf%84%ce%b7%cf%82-%cf%83%ce%b7%ce%bc%ce%b1%cf%83%ce%af%ce%b1%cf%82-%cf%84%ce%b7%cf%82-%cf%83%cf%85/
LOCATION:Virtual: Global
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/GREEK.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251116T110000
DTEND;TZID=America/New_York:20251116T120000
DTSTAMP:20260531T094635
CREATED:20251008T155726Z
LAST-MODIFIED:20251008T155726Z
UID:20290-1763290800-1763294400@www.sumairafoundation.org
SUMMARY:Human Collective Project | Caregivers
DESCRIPTION:The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation\, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe\, inclusive space for family members\, partners\, siblings\, children\, and loved ones to connect\, share\, and be heard. Led by our dedicated Caregiver Ambassadors\, who bring their own lived experience and empathy to the conversation\, participants can expect heartfelt conversations\, mutual support\, and practical insights into the caregiving journey. Whether you’re navigating the emotional\, physical\, or logistical challenges of caregiving\, this group is designed to uplift and empower you through community\, compassion\, and connection.
URL:https://www.sumairafoundation.org/event/human-collective-project-caregivers/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/Caregiver-Visual-FB.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251118T200000
DTEND;TZID=Europe/Amsterdam:20251118T210000
DTSTAMP:20260531T094635
CREATED:20251008T173035Z
LAST-MODIFIED:20251009T150856Z
UID:20294-1763496000-1763499600@www.sumairafoundation.org
SUMMARY:Het belang van deelname van mensen met MOGAD aan onderzoek\, met als doel de ziekte beter te begrijpen en behandelen
DESCRIPTION:Bent u of kent u iemand die getroffen is door MOGAD? U bent uitgenodigd voor een webinar over MOGAD en klinische studies op 18 november. \nWe zullen worden vergezeld door prof. Barbara Willekens en prof. Guy Laurys\, die een overzicht geven van MOG-antilichaamziekte\, klinische studies en hoe patiënten kunnen deelnemen aan MOG-gerelateerde klinische studies voor toekomstige therapieopties. Dit online patiëntenvoorlichtingsevenement wordt gemodereerd door Saskia\, wiens moeder de diagnose MOGAD kreeg. \nAanwezigen die live deelnemen\, kunnen de experts in realtime vragen stellen. \nDit webinar wordt opgenomen en beschikbaar gesteld voor herhaling op het YouTube-kanaal van TSF. \nDit programma is mogelijk gemaakt met steun van UCB.
URL:https://www.sumairafoundation.org/event/het-belang-van-deelname-van-mensen-met-mogad-aan-onderzoek-met-als-doel-de-ziekte-beter-te-begrijpen-en-behandelen/
LOCATION:Virtual: Amsterdam\, Netherlands
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/DUTCH-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20251122T123000
DTEND;TZID=Europe/Rome:20251122T193000
DTSTAMP:20260531T094635
CREATED:20250923T185141Z
LAST-MODIFIED:20251014T165913Z
UID:20228-1763814600-1763839800@www.sumairafoundation.org
SUMMARY:3° Giornata dedicata da malattie neuroimmunologiche rare - Roma
DESCRIPTION:TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune\, miastenia grave\, MOGAD e NMOSD\, i loro caregiver e i medici interessati a queste patologie a partecipare a questa giornata di formazione\, convivialità e divertimento. \nIn collaborazione con il Dott. Raffaele Iorio del Policlinico Universitario Agostino Gemelli e in partnership con l’Associazione Italiana Miastenia (AIM)\, TSF Italia è lieta di invitarvi alla 3° Giornata dedicata a pazienti\, caregiver e medici. \n\n\nQuesto evento a libera iscrizione vi permetterà di: \n\nIncontrare pazienti italiani \, i loro caregivers ed i clinici esperti di queste patologie\nPorre domande agli esperti in diretta relative alla gestione dei sintomi\, le terapie\, le comorbidità e molto altro\nAggiornarvi in merito alle ultime ricerche scientifiche con l’aiuto di medici esperti italiani\nFare rete e instaurare connessioni con la comunità locale\n\nL’evento è gratuito e il pranzo sarà offerto da noi.
URL:https://www.sumairafoundation.org/event/3-giornata-dedicata-da-malattie-neuroimmunologiche-rare-roma/
LOCATION:Nazionale Spazio Eventi (Roma)\, Via Palermo\, 10\, Roma\, 00184\, Italy
CATEGORIES:Patient Days
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Rome-Patient-Day-2025-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260531T094635
CREATED:20251008T180110Z
LAST-MODIFIED:20251008T180110Z
UID:20297-1761595200-1761598800@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251129T130000
DTEND;TZID=Europe/Paris:20251130T130000
DTSTAMP:20260531T094635
CREATED:20250915T142820Z
LAST-MODIFIED:20250915T142820Z
UID:20188-1764421200-1764507600@www.sumairafoundation.org
SUMMARY:3ème week-end Patients et Aidants NMOSD & MOGAD - Lyon
DESCRIPTION:TSF France\, en partenariat avec le MIRCEM\, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! \nL’évènement\, complétement gratuit\, aura lieu au Mama Shelter de Lyon\, rue Domer\, les 29 et 30 novembre 2025. \nNous sommes ravis d’être accompagnés par les experts du MIRCEM et de nombreux autres intervenants qui nous rejoignent pour ces deux journées d’information. \nVenez rencontrer les acteurs de la NMOSD et la MOGAD\, suivre nos ateliers mais surtout échanger avec d’autres Patients et Aidants qui vivent la même chose que vous. \nVenez mettre en lumière la NMOSD et la MOGAD avec TSF France. \nÀ bientôt! \nL’équipe TSF France (Anass\, Bérengère\, Claire\, Elodie\, Emma\, Fatiha\, Nassima\, Natasha\, Nelly et Selma) \nEnvoyez vos questions à: Berengere@sumairafoundation.org ou guillaume@sumairafoundation.org \nAccès par le métro Station Jean MACE – Parking public à proximité
URL:https://www.sumairafoundation.org/event/3eme-week-end-patients-et-aidants-nmosd-mogad-lyon/
LOCATION:Mama Shelter Lyon\, 13 Rue Domer\, Lyon\, 69007\, France
CATEGORIES:TSF France,TSF Patient Day
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/https-cdn.evbuc_.com-images-1121221683-132744545551-1-original.20250911-144625.jpeg
END:VEVENT
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