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BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20251001T180000
DTEND;TZID=America/Bogota:20251001T190000
DTSTAMP:20260510T144826
CREATED:20250910T185924Z
LAST-MODIFIED:20250910T185924Z
UID:20140-1759341600-1759345200@www.sumairafoundation.org
SUMMARY:Yoga Para Todos. Yoga y Vida
DESCRIPTION:Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico\, es celular\, mental\, intelectual y espiritual: te afecta en todo tu ser.
URL:https://www.sumairafoundation.org/event/yoga-para-todos-yoga-y-vida/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Maria-Victoria-Beltran.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251009T200000
DTEND;TZID=America/New_York:20251009T210000
DTSTAMP:20260510T144826
CREATED:20250730T212759Z
LAST-MODIFIED:20251010T163135Z
UID:19874-1760040000-1760043600@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-47/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2024/10/Human-Collective-Project-Web-Banner.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Warsaw:20251014T180000
DTEND;TZID=Europe/Warsaw:20251014T190000
DTSTAMP:20260510T144826
CREATED:20250928T160219Z
LAST-MODIFIED:20251009T001857Z
UID:20237-1760464800-1760468400@www.sumairafoundation.org
SUMMARY:Zrozumienie MOGAD i znaczenia udziału pacjentów w badaniach klinicznych
DESCRIPTION:Czy Ciebie lub kogoś bliskiego dotknęła plaga MOGAD? \nDołącz do nas 14 października o godzinie 18:00 czasu środkowoeuropejskiego\, aby zapoznać się z eksperckim przeglądem MOGAD\, obejmującym objawy\, rokowania i leczenie\, a następnie z inspirującą dyskusją na temat badań klinicznych. W webinarium wezmą udział dr Robert Bonek\, dr Maciej Juryńczyk i dr Paweł Wrona. \nUczestnicy na żywo będą mieli okazję zadać pytania ekspertom. Webinarium zostanie nagrane i udostępnione do odtworzenia na kanale TSF w serwisie YouTube. \nProgram ten jest możliwy dzięki wsparciu UCB.
URL:https://www.sumairafoundation.org/event/zrozumienie-mogad-i-znaczenia-udzialu-pacjentow-w-badaniach-klinicznych/
LOCATION:Virtual: Poland\, Poland
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/09/POLISH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251015T190000
DTEND;TZID=Europe/Paris:20251015T200000
DTSTAMP:20260510T144826
CREATED:20250919T153314Z
LAST-MODIFIED:20250919T153314Z
UID:20210-1760554800-1760558400@www.sumairafoundation.org
SUMMARY:Salute femminile e NMOSD/MOGAD: dialogo su gravidanza\, allattamento e sessualità
DESCRIPTION:Siete tutti invitati al webinar – Salute femminile e NMOSD/MOGAD: dialogo su gravidanza\, allattamento e sessualità  – esclusivo di TSF Italia dedicato alle donne che vivono con NMOSD o MOGAD! \n  \n Data: 15 ottobre alle 19:00 CET \n Relatrice: Dott.ssa Sara Carta\, esperta in Neuroimmunologia presso l’Università di Verona \n Temi: Gravidanza\, Allattamento e Sessualità – aspetti cruciali per una gestione consapevole della salute. \n  \nPartecipando in diretta\, avrete l’opportunità di: \n– Porre domande in tempo reale alla Dott.ssa Carta \n– Condividere esperienze e dubbi in uno *spazio sicuro e accogliente*\, libero da pregiudizi \n– Connettervi con altre persone della comunità NMOSD e MOGAD italiane \n  \n Questo webinar è aperto a pazienti\, caregiver e a tutti coloro interessati a comprendere meglio queste condizioni neuroimmunologiche dal punto di vista della salute femminile. \n  \nQuesto evento è reso possibile grazie al supporto di Alexion. \n  \n Iscriviti ora e unisciti a noi per un momento di condivisione e crescita! https://us02web.zoom.us/webinar/register/WN_I2EUzRCMR9Gdtm92DG6WOA \n  \nTSF Italia si impegna a promuovere la consapevolezza e il sostegno alle persone affette da malattie neuroimmunologiche rare.
URL:https://www.sumairafoundation.org/event/salute-femminile-e-nmosd-mogad-dialogo-su-gravidanza-allattamento-e-sessualita-2/
LOCATION:Virtual: Italy\, Italy
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/09/Sara-Carta-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251018T110000
DTEND;TZID=America/Los_Angeles:20251018T170000
DTSTAMP:20260510T144826
CREATED:20250822T164117Z
LAST-MODIFIED:20250912T134018Z
UID:20009-1760785200-1760806800@www.sumairafoundation.org
SUMMARY:Seattle Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:We’re coming to Seattle! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, partner\, care-partner\, clinician\, nurse\, researcher and/or advocate from the Pacific Northwest region? You’re invited to our event on Saturday\, October 18th at the UW Medicine Neurosciences Institute. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Shuvro Roy at the UW Medicine Neurosciences Institute\, Dr. Pavle Repovic at Swedish Neuroscience Institute and in partnership with Autoimmune Encephalitis Alliance and The Stiff Person Syndrome Research Foundation. Registration is free and lunch will be served. We can’t wait to see you in Seattle! \n— \nAE stands for autoimmune encephalitis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/seattle-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Washington\, 4295 Little Canoe Channel NE\, Seattle\, WA\, 98195\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/08/Seattle-Patient-Day-2025-1.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251022T190000
DTEND;TZID=Europe/London:20251022T200000
DTSTAMP:20260510T144826
CREATED:20251008T154342Z
LAST-MODIFIED:20251008T154342Z
UID:20285-1761159600-1761163200@www.sumairafoundation.org
SUMMARY:Human Collective Project | United Kingdom
DESCRIPTION:The Human Collective Project (HCP) is a community initiative for people living with NMOSD\, MOGAD and other rare neuroimmune diseases\, to come together in a safe\, confidential and encouraging space. These gatherings are not recorded and allow for everyone to speak openly and honestly without worry. HCP is more about than just a discussion\, it’s about connection and belonging.
URL:https://www.sumairafoundation.org/event/human-collective-project-united-kingdom/
LOCATION:Virtual: United Kingdom\, United Kingdom
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2025/10/UK-HCP-Visuals-169-Facebook-Cover.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260510T144826
CREATED:20251008T180110Z
LAST-MODIFIED:20251008T180110Z
UID:20297-1761595200-1761598800@www.sumairafoundation.org
SUMMARY:Human Collective Project | Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/human-collective-project-mental-health-mondays/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
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