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X-WR-CALDESC:Events for The Sumaira Foundation
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DTSTART;TZID=America/New_York:20250814T200000
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UID:19870-1755201600-1755205200@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-45/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
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DTSTART;TZID=America/Phoenix:20250816T110000
DTEND;TZID=America/Phoenix:20250816T170000
DTSTAMP:20260510T163844
CREATED:20250707T190725Z
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UID:19712-1755342000-1755363600@www.sumairafoundation.org
SUMMARY:TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is coming to Salt Lake City! \nAre you an AE*\, CNS Vasculitis\, MOGAD*\, neurosarcoidosis\, NMOSD* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate from the Intermountain West region? You’re invited to our event on Saturday\, August 16th at the University of Utah Health. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local AE\, CNS Vasculitis\, MOGAD\, neurosarcoidosis\, NMOSD or SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in SLC! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder\nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder\nAE stands for autoimmune encephalitis\nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/tsfs-intermountain-west-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:University of Utah\, UT\, United States
CATEGORIES:TSF Patient Day
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/SLC-Presenter-Slides.png
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DTSTART;TZID=America/Sao_Paulo:20250818T110000
DTEND;TZID=America/Sao_Paulo:20250818T120000
DTSTAMP:20260510T163844
CREATED:20250708T185929Z
LAST-MODIFIED:20250708T213343Z
UID:19719-1755514800-1755518400@www.sumairafoundation.org
SUMMARY:Compreendendo a MOGAD e a importância da participação do paciente em ensaios clínicos
DESCRIPTION:Você ou alguém próximo a você foi afetado pelo MOGAD? Junte-se a nós na segunda-feira\, 18 de agosto\, para aprender sobre MOGAD e a importância da participação de pacientes em ensaios clínicos. Este programa contará com a participação do Dr. Douglas Kazutoshi Sato (do Brasil) e da Dra. Ernestina Santos (de Portugal)\, que responderão a perguntas da nossa plateia em tempo real. Este programa é promovido pela Fundação Sumaira em colaboração com a NMO Brasil e a ABNMO e é possível graças ao apoio da UCB.
URL:https://www.sumairafoundation.org/event/compreendendo-a-mogad-e-a-importancia-da-participacao-do-paciente-em-ensaios-clinicos/
LOCATION:Virtual: Brazil\, Brazil
CATEGORIES:Understanding MOGAD
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/07/PORTUGUESE.png
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BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20250827T190000
DTEND;TZID=Africa/Johannesburg:20250827T200000
DTSTAMP:20260510T163844
CREATED:20250730T212407Z
LAST-MODIFIED:20250730T212407Z
UID:19866-1756321200-1756324800@www.sumairafoundation.org
SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa-3/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/05/HCP-Master-169-Facebook-Cover.png
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