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X-WR-CALDESC:Events for The Sumaira Foundation
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SUMMARY:TSF's Human Collective Project Meetings
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. \nSince 2020\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the NMOSD/MOGAD communities feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-meetings-44/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group,TSF Programming
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DTSTART;TZID=America/Chicago:20250726T110000
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DTSTAMP:20260531T164016
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SUMMARY:Chicago Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:Are you an NMOSD*\, MOGAD*\, AE*\, MG* or SPS* patient\, caregiver\, clinician\, nurse\, researcher and/or advocate in the Chicagoland area? You’re invited to our event on Saturday\, July 26th at Rush University Medical Center’s Searle Center. We are proud to collaborate on this event with the Chicago MS Alliance. \nJoin us for a day of education\, community\, and fun to: \n\nMeet local NMOSD\, MOGAD\, AE\, MG and SPS patients\, caregivers and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, co-morbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis in-person event is free and lunch will be served. We can’t wait to see you in CHI-town! \nThe Sumaira Foundation team \n— \nNMOSD stands for neuromyelitis optica spectrum disorder \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nAE stands for autoimmune encephalitis \nMG stands for myasthenia gravis \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/chicago-patient-day-for-rare-neuroinflammatory-disorders/
LOCATION:Rush University Medical Center\, 1725 West Harrison Street #5th floor\, Chicago\, IL\, 60612\, United States
CATEGORIES:TSF Patient Day
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DTSTART;TZID=Africa/Johannesburg:20250730T190000
DTEND;TZID=Africa/Johannesburg:20250730T200000
DTSTAMP:20260531T164016
CREATED:20250617T154441Z
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SUMMARY:Human Collective Project | Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another.
URL:https://www.sumairafoundation.org/event/human-collective-project-africa/
CATEGORIES:Support Group
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